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News from WPI symposium: Name change to be proposed for XMRV

Discussion in 'XMRV Research and Replication Studies' started by richvank, Aug 19, 2010.

  1. Robyn

    Robyn *****

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    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
     
  2. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    Question for Rich, Dr Burrascano, Cort, WPI -
    Do we know who else (scientists/doctors/public health officials) was able to attend the WPI's first Scientific Symposium on XMRV/ HGRAD at the new WPI facility this week?

    It would be great to know who else was invited/able to be there at/on this historical occasion.

    I guess this kind of detail will be posted on the WPI site or elsewhere - in due course.
     
  3. bullybeef

    bullybeef Senior Member

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    I said this last year. Change the name to removed the association. All we can hope for is the WPI use the science to sink them. If the association with XMRV/ME (HGRV/HGRAD) can be 100% proven, hopefully there will be no way out. The Alter/Lo paper should go along way to helping the WPI bury the likes of Reeves & co.
     
  4. jspotila

    jspotila Senior Member

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    Can anyone share the list of invited participants from the symposium on Tuesday?

    Also, is Dr. Robert Silverman (or any of the others who first found XMRV in humans) in this loop?
     
  5. August59

    August59 Daughters High School Graduation

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    This is why the CDC has been changing their website so much lately!!
     
  6. SunnyGal

    SunnyGal Senior Member

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    In Dr. B's 2008 treatment guidelines he says not to exercise until you are well into the recovery stage of chronic Lyme disease treatment. Perhaps the same could be said for CFS recovery?


     
  7. V99

    V99 *****

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    We can all see that this is means so much more. I'm very excited, ever since Mikovit's name appeared on the conference presentation list.

    Don't worry about the CDC being able to weasel out because of XMRV, or the name change. They were meant to be watching for things like this, they had 25 years to do something. They dropped the ball and abused the patients. It's all recorded and dated, same for the UK gangsters. We can fix things so this never happens again. There are too many of us for this to be ignored now.
     
  8. Sunshine

    Sunshine Senior Member

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    Just think .............

    Wessely and Reeves can have a theory on HGRV induced GRAD and no one will care. They'll think yea whatever a psychiatrist and their fantasy, just as if someone had a theory that patients beliefs caused or maintained HIV/AIDS.

    Wessely and Reeves can only operate inside ME CFS label, and are terribly limp outside it as no one will listen or care what they think because it's all theory and conjecture and supposition.

    Wouldn't that be nice.

    Additionally anyone with GRAD (ex neuro immune ME CFS) with evidence of wrong doing in the medical file can now sue the people who harmed them, meaning these people counter sue Wessely and Reeves for telling them their hatred towards ME CFS patients was justified at the time. In reality, it never was justified. The public and medics simply didn't care what happened to us, and turned a blind eye when doctors accused us (and often our mothers) of causing neuro immune ME CFS.

    Wouldn't that be nice too.

    Wessely and Reeves in court, counter sued by powerful doctors who harmed their patients (seeking damages) because on the advise of Wessely and Reeves ( that had no evidence base) they relapsed their patients with exercise via CBT.

    Two words: Court Case.

    How many people will try and take these people and ruin them back? The damage they have done to ME CFS patients, is biblical in proportion.
     
  9. August59

    August59 Daughters High School Graduation

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    I don't have a list, but I do know that Dr. Black (Dr. Lapp's associate) from Hunter Hopkins is there and I got the impression that it was a very significant group of people in terms of names and numbers.
     
  10. SunnyGal

    SunnyGal Senior Member

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    I think you're right on spot with that, Rrrr. I'm pretty sure that Dr. Mikovits said at some point that chronic Lyme disease could be explained by XMRV, that XMRV may be why some people who get the Lyme bacteria get chronic Lyme while others don't. I can't say where I saw this (Lyme brain :D), but I think it was one of her early talks. I'm not at all surprised (and quite elated actually) that they've pulled Dr. B in already. As I have both diagnoses I've been paying attention to when the worlds of XMRV and Lyme will collide. And I fully believe they will. Looks like maybe sooner than later.

     
  11. V99

    V99 *****

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    I have a question, does it now look like this is the worst health crisis in the North American continent? because it does to me.
     
  12. Stone

    Stone Senior Member

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    You got that right! The hope of living long enough to see those rat-bastards in court is one of the things that makes me hang on day after day. I may not see it, but just hoping for that encourages me to get up in the morning. Not for revenge, but for the sake of JUSTICE.

    Deuteronomy 16:20 Justice, justice shall you pursue, that you may thrive...
     
  13. Lynn

    Lynn Senior Member

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    On a video that no one saw : ), I believe that Dr. Ruscetti lamented the name XMRV. He felt that it should have an H in front of it to denote that it is a human retrovirus like HIV and HTLV. My guess is that spurred the name change.

    Lynn
     
  14. V99

    V99 *****

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    I don't know about you guys but I want to see jail time for these people.
     
  15. V99

    V99 *****

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    I think you are right. So many people think this is an endogenous retrovirus. However, it doesn't seem to be the name, it's more of a deliberate attempt to destroy the research.
     
  16. Dreambirdie

    Dreambirdie work in progress

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    I am really excited to hear about this too.

    But I don't know about HGRAD or HAGGARD... ? better than CFS though, for sure.
     
  17. bullybeef

    bullybeef Senior Member

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    On that note, thanks to having a free health service here in the UK, a person can request a copy of their medical records, but it can be refused on grounds that the contents could cause the owner harm! So if theres something in there that the NHS wouldnt wish the person to be privy to, they could refuse access, a give a false reason that no one would be wise to.

    I only read this recently on the NHS website.
     
  18. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    Cort's going to have to change the XMRV Buzz page to HGRV Buzz!

    I dunno - doesn't have the same kind of, er, buzz to it!
     
  19. bullybeef

    bullybeef Senior Member

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    It also makes pretty good sense to me that ticks could pass XMRV (HGRV) on to another person.
     
  20. akrasia

    akrasia Senior Member

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    The Price of Recognition

    In a recent Oslers Web blog post, Johnson quoted Mikovits, "
    "This the worst public health crisis in our history and the government has no right to stop [this paper's] publication,"

    My thoughts on a dark night are that we are being rocketed from marginality and mockery to a place where we might be feared and marginalized again; before we could be ignored or joked about.

    They have to get on the stick with determining exactly how the illness is transmitted because until they do, and it is convincing, we are going to be targets. You can't claim cluster cases and then deny the virus isn't transmissable. We all know that it is.
     

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