Discussion in 'General ME/CFS News' started by liquid sky, Jun 23, 2012.
New blog post on treating the boy Andrew and his response to treatment.
Quite moving. Andrew's story sounds familiar. I mean, did he and his mum appear in a video? Or maybe it was a newspaper story. Bless Dr. Deckoff-Jones. Shame on the doctors who wouldn't help and made Andrew worse with GET.
Thanks, liquid sky.
I think he did appear in a video. It is crazy that Jamie could not get a doctor to treat him there in the UK. He should not have had to be flown to Hawaii to get any help. Why would they deny care as simple as oxygen and active folic acid supplementation to a young child?
Reminds me that the folks in the UK have it worse than here in the states.
Thanks for the link, just reading other threads further down the page, neurofeedback looks interesting but i have heard that one needs a good practioner or a cfs/me person could end up with problems from it. I have looked into this before but it seems expensive without a gaurentee, i would like to try it to help my insomnia. Dr J.D seems to use it for convulsions, does anyone know if she has used it for sleep /insomnia issues?
Hopefully early interventions for kids can help then to avoid being a cfs/me adult.
You can also try a Google Site Search
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