I am newbie with CFIFDS very severe and waiting for repeat xmrv testing through vip. certain it will be positive now as I react very strongly to any small amount of antiviral treatments that have been tried. Neurological symptome severe in nature massive headaches severe cognitive dysfunction, brain inflammation, seizure disorder, exhaustion music right side of head, insomnia, severe chemical sensitivies, blurred vision. Have been treated for lyme and coinfections without success. I did test POSITIVE for Dr Fry mystery PROTOZOA. My viral titres are high ebv, HHV6, parvovirus, herpes. Need name of advocate and practitioner who will be able to help as I am too sick to develop course of care and treatment be it holistic or rx as am too sick and don't have anyone to manage care. I live on cape cod 2 1/2 hours away from boston. I have read that lyme and xmrv go hand in hand. Symptoms are getting worse and worse.