SOC
Senior Member
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Gosh, no! We're all suffering together. Now if you start telling people they ought to exercise because it worked to improve your CFS, so it should work for everyone else, you'll start seeing some serious pushback. You seem much too sensible a person to even consider doing such a thing, so you'll feel very welcome here.Quite simply I don't experience PEM, unless as a primary result of my OI being exacerbated. I hope this means I won't be treated like an outcast within the forum?!
Im going to see a cardiologist in about 6 weeks to look at my orthostatic intolerance and how it can be managed.
Good luck with that! Try to make sure you get a tilt table test. Some docs like to brush us off once we have a CFS diagnosis of any kind and refuse to do the obvious tests.
FYI I have been tested for rheumatoid arthritis and Lyme disease. What other tests should I try and get on the NHS?
Best wishes
Jamie
Hopefully some of our UK members will chip in with advice on testing within the NHS.