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Patient Experience: "What Bronllys taught me about pacing."
In 2012, Maya, who had tried to cope with ME/CFS on her own for many years, attended a pain management centre in Wales, U.K., and is now able to achieve more through pacing and acceptance, than she had been able to before the course...
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New XMRV study to be undertaken.

Discussion in 'XMRV Research and Replication Studies' started by V99, Mar 31, 2010.

  1. Cloud

    Cloud Guest

    Thanks for the link Cookie Monster. I didn't know about that poll, but not surprised by the results. Also, Dr Hyde has been researching the vaccine (in particular Hep B) link to ME/CFS, for many years. You will get several hits searching his work and others on this connection.

    Omer...I've only been told that the consent is in the mail. Not yet sure about draws yet.
  2. omerbasket

    omerbasket Senior Member

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    Okay, thanks Cloud :Retro smile:
  3. Bob

    Bob

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    Wow, thanks Cookie Monster... I hadn't seen that... that's a massive result for Hep B isn't it... all the other vaccines seem to barely register...
    I'd never heard that specifically Hep B was a possible trigger for ME... I'd only heard that any vaccinations were possible triggers...
    I wonder if this is something that has been over-looked before... I've not come across any research about it.


    oh, I've just read Cloud's post... thanks Cloud... i will do a search for Hyde and Hep B...

  4. Bob

    Bob

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    Hi OS,
    That's interesting... It sounds vaguely familiar to me, but I can't remember what I read... do you know anything about 'antisensing'?
    Bob


  5. August59

    August59 Daughters High School Graduation

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    I might have to bite the bullet and see if I can get in on this trial. Might be worth it! Da know!!!
  6. alex3619

    alex3619 Senior Member

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    Hep B and CFS

    Hi

    Not so much about a trigger but a worsening of symptoms has been covered by Dr. Charles Sheffield, where nearly all CFS patients feel worse after Hep B vaccination. This has been known for many years, and implies that it might be a trigger. It is certainly worth investigating, and is further evidence toward the view that the failure to fund proper epidemiological studies in CFS is a major problem, and has been for decades.

    Bye
    Alex
  7. awol

    awol *****

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    I certainly tipped from vague, not too debilitating post-mono fatigue to real CFS after a string of vaccinations, including Hep B. I could not point to Hep B specifically as the cause of this because I also had vaccines for Hep A, yellow fever, and an MMR update around the same time.

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