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New UK XMRV/Retrovirolgy Website - MEA announces

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by pictureofhealth, Dec 26, 2010.

  1. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    By the way, if anyone's interested: Prof Michael Sharpe, back row, second in from left; Prof Peter White, back row, fifth from left; Prof Simon Wessely, front row, fifth from right and I think, based on other photos, that to the right of Prof Wessely (in the blue sweater) that's Prof Tony Pinching.

    [​IMG]
  2. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    Thanks! Look forward to hearing if there is any further clarification from the MEA.

    Thanks for heads up on the photo. But who is the chap in the black bobble hat, far left middle row??!!! "Last of the Summer Wine" springs to mind. Perhaps he just walked into shot off the street at the last minute!
  3. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Tony Britton has responded:

    Im happy to clarify that the MEA was not involved in any way in the formation of this new forum, wish it well and hope it provides a useful, UK-centric forum for discussion of this hugely important topic.

    Ive now seen the name of the new site owner bruited abroad. Hes not known to me but I hope he gets a fair wind behind him before long.
  4. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Hah! I very nearly drew attention to the startling resemblance of the gentleman on the end of the middle row to "Compo"...
  5. Wildcat

    Wildcat Senior Member

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    Hi Pictureofhealth,

    MEagenda is quite correct about the actual structure and function of BACME…..


    And I share MEagenda’s concerns about the Phoenix site owner’s ‘permissive’ attitude to Phil Parker’s Lightning, Gupta, both of whom claim their systems cure ME: not help you live with sickness, or help with relaxation, but Recovery from ME, and according to Parker, Gupta etc - when ME sufferers don’t recover its because they supposedly didn’t do it right, or do it enough…



    Some UK ME sufferers have followed the soaring careers and business ‘success’ of the NLP mindbody exploiters, deconstructed their tactics, and warned that the mindbody entrepreneurs’ construction of ME does not fit the Canadian Criteria but does fit dustbin diagnosis chronic fatigue… these people such as Parker, John Eaton (Reverse) and Gupta have basically redefined out disease. OK, some people with ME sufferer from stress, so do some people with Motor Neurone disease, MS etc etc. Stress is not exclusive to ME sufferers. But stress reduction is not the be all and end all of treatments for other diseases.



    …..and I am also alarmed that this site owner has not noticed that ‘Abraham’ as ‘channelled’ by Esther and Jerry Hicks, propagates the mainstream misconception of ME as yuppie burnout (amazing that Abraham as a discarnate wise energy-entity does not have knowledge of the medical research facts about ME, the facts about the Lake Tahoe and other epidemics, or insight into the collusion of the health insurer UNUM in the British ME policy, or Unum executives Mansel Aylward and Gordon Waddell’s influence on British sickness benefits policy…. etc etc etc)…




    BUT, Pictureofhealth, So Many of your points about the British ME policy and how its propagated are justified and I’m very glad you made them….. please carry on making those points, as informed British ME sufferers are currently being silenced by the ubiquitous false construct of ME as stress, burnout and dysfunctional emotions etc etc. We are being beaten over the head with the ‘Positivity’ religion, and urged to do relaxation, NLP, yoga, Tai Chi (get real! I did Tai Chi before ME, now its far too demanding on energy and impossible because of my problems with physical balance) etc …. whilst being denied legitimate tests, treatment, homecare, and legitimate sickness benefits……… and referenced ME bio-research and other referenced facts even get dismissed as ‘Negativity’ by adherents of the new cultural Positivity Cult.


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  6. Wildcat

    Wildcat Senior Member

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    In the photo (aargh), the fella fourth from the left in the front row looks like Prof Peter Halligan of the UNUM Centre for Psychosocial Disabilities at Cardiff University. The fella in the front row next to Wessely (like the Mac!) with the red buttonhole may be Prof Mansel Aylward of the UNUM Centre. But difficult to be one hundred percent sure as they are squinting.

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  7. justy

    justy Senior Member

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    Thanks wildcat for that really good precis of the situation.
    I have had mitochondrial testing done which has proven to me beyond a doubt that my illness is not just in my mind or only caused by stress. And yet the idea of M.E as being stress burn out induced is so ubiquitous that i even consider doing these type of therapies in my desperation to get well. I question myself continously and that is a stress that people with other illnesses do not have to endure.

    This is also the view of the general public and NHS so it is very hard not to buy into it for many who consider themselves intelligent and political beings.
    Thanks to everyone on this thread who has reminded me of that.
  8. carolwxyz99

    carolwxyz99 Senior Member

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    The first thing that struck me about SW fifth from the right in the front row, is what is he doing with his hands while they are in his pockets LOL. It would be very interesting to get a psychologist to analyse his stance/posture.
  9. Francelle

    Francelle Senior Member

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    You're very naughty, carolwxyz99!!

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