Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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NEW UK Study website for WPI

Discussion in 'XMRV Research and Replication Studies' started by V99, Mar 31, 2010.

  1. V99

    V99

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    This was posted on the WPI facebook discussion board.

    http://www.xmrvweb.me.uk/index.html

    Not sure how the WPI is involve in this site. Here is the WPI facebook topic http://www.facebook.com/topic.php?uid=154801179671&topic=12772


    The Home page:
     
  2. V99

    V99

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    The section on the site called, Dr. Mikovit's Updates, reports the following:

     
  3. Adam

    Adam

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    V

    You on your metal today.

    thanks for the info

    Adam
     
  4. V99

    V99

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    Thanks Adam, but looking for info is the easy job compared to what others on this forum can do.

    Unfortunately I missed out on this study, but I am happy to wait.
     
  5. Abraxas

    Abraxas Senior Member

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    Thanks V99 :Retro smile: sorry you didn't make it in to the study.
     
  6. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Clay, Alabama
    Mikovitz is very concerned about the bad situation in UK. I am glad she is putting WPI resources into helping my fellow comrades across the Atlantic.

    Tina
     
  7. valia

    valia Senior Member

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    ooops! Posted in the wrong place
     
  8. Diva55

    Diva55 Member

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    Anyone having trouble with this website? I registered & got the activation email but now I can't log on.

    Says it's temporarily unavilable in a menu like section on the right but it's been like that since I registered.

    Any tips?

    Thanks
     
  9. willow

    willow Senior Member

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    Diva, I just tried and it was ok for me.

    But i registered yesterday so if you still can't get on perhaps there's temporary trouble with the newest registered??
     
  10. Countrygirl

    Countrygirl I'm with Cheesus

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    I've just checked it and it is working for me as well.

    I have reported your problem, Diva 55, so please try again and see if it functioning for you now.

    Best wishes,

    C.G.
     
  11. Jenny

    Jenny Senior Member

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    I can't register either - it won't accept the word you have to type.

    Jenny
     
  12. blackbird

    blackbird caged.

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    Spidey senses tingling on this.

    Site looks a bit iffy, couldn't fid that link on the WPI facebook page.
    whois says the site is registered to someone.
    May be fine, he may be a web guy, but something seems a bit fishy to me.

    edit: Just noticed, on the links page, there is only one to the 'Whitemoor' institute !
     
  13. V99

    V99

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    The posting is still on the discussion board. I do hope it is genuine
     
  14. Knackered

    Knackered Guest

    why would someone make a fake website?
     
  15. Countrygirl

    Countrygirl I'm with Cheesus

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    xmrvweb.me.uk

    I have inside information that this site is entirely genuine. Really!!! :D

    Best wishes,

    C.G.
     
  16. blackbird

    blackbird caged.

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    I don't know, why would someone pretend a disease didn't exist........

    I found it on the facebook page.
    It just looks very unprofessional, but maybe it is.
    Just people trying to help, so may well be totally legitimate.
    Sometimes it pays to be cautious though (I may just take that too far sometimes).
     
  17. fingers

    fingers Senior Member

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    It is very unprofessional, I can assure you all......unlike Simon Wesselly (sp?), Esther Crawley, etc.

    You all need to decide what you subscribe to.

    Meantime, I send you all love and best wishes for Easter.

    Steve
     
  18. fingers

    fingers Senior Member

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    PS. My 12 year old son developed the site. If anybody's got a few k, we'll get it done "professionally".

    Moral : Don't be fooled by appearances.
     
  19. JAS

    JAS

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    I just want to add that I am working on the site too...we are very grateful to Fingers' son for all his help! Unfortunately we are not professional IT consultants and to be honest pretty impressed that we got this far!!! We are CFS/ME sufferers like you who want to help and make a difference with CFS/ME and to ensure the truth of XMRV is told. We will put something on the 'About Us' page very soon but thought that it was more important to get the site up and running first...can sort out all the other bits later. I hope that this puts your mind at ease. I want this UK Study to succeed, I am XMRV +ve, as you know I am not the only one here in the UK but we do need some more company!!! x
     
  20. fred

    fred The game is afoot

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    Thank you for the clarification, JAS.
     

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