New Theory and Treatment for POTS, EDS, and MCAS/D

[Isaiah 58:11]

http://thelowhistaminechef.com/dr-diana-driscoll-interview-vagus-nerve-and-potsmast-cell-activation/

Did you read the article? What do you think? Does anyone want to try the supplements?

 

[minkeygirl]

Diana Driscoll posts on health rising also. Here is a link from 2014 about this

http://forums.phoenixrising.me/inde...-driscoll-theory-validated.28059/#post-427504

 

[Isaiah 58:11]

Oh, oops! Is it ok to just delete my post then?

 

[minkeygirl]

Yep. You night want to look on Health Rising forum. . I know Doris Driscoll posts over there and may have more info.

 

[leela]

Please leave it, @Isaiah 58:11 , it's good to be reminded of Dr Diana, I always forget about her. In fact, I didn't know she had started treating. I used to really enjoy watching her "Pretty Ill" videos.

 

[Hip]

It seems that Dr Diana Driscoll theorizes that for those with Ehlers-Danlos Syndrome (EDS), the cause of their POTS is due to a combination of:

• External Communicating Hydrocephalus
• Chronic Cerebrospinal Venus Insufficiency
• Mast Cell Disease

Treatment of the above recommended by Dr Driscoll is:

• Diamox (acetazolamide)
• H1 and H2 inhibitors

I presume this will only apply to EDS patients with POTS.


See: The Driscoll Theory: The Role of External Communicating Hydrocephalus, Mast Cell Disease and CCSVI as the cause of POTS (Postural Orthostatic Tachycardia Syndrome) in Ehlers-Danlos Syndrome

 

[justy]

I read the interview this week as well and thought it looked very interesting. I have EDS and MCAS and Lyme/M.E. It seems she has a clinic where they intensive study of the patient over 1 week. She also treats patients with chronic Lyme as there is a big overlap with EDS MCAS and Lyme.

Not sure about the supplements yet as I haven't looked into them enough.