August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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New! Theatrical trailer for The Forgotten Plague - have a look, spread the link!

Discussion in 'Advocacy Projects' started by Sasha, May 14, 2015.

  1. Sasha

    Sasha Fine, thank you

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    https://www.facebook.com/CFSDocumentary/posts/949839868380202

    Wow... just wow... it looks fantastic!
     
    Gingergrrl, justy, rosie26 and 13 others like this.
  2. ahmo

    ahmo Senior Member

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    oh, this is so good....:cry:
     
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  3. Sasha

    Sasha Fine, thank you

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    I know - I was :cry: too. Ryan Prior and Nicole Castillo really know what they're doing!

    @charles shepherd - what about getting this screened at the UK CMRC meeting?
     
    justy, SDSue, Scarecrow and 1 other person like this.
  4. ahmo

    ahmo Senior Member

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    @Sasha, then I went to the other vid w/ the jacket and really bawled. It's as if I generally dissociate from the hugeness of how hard life is. I can't verbalize it. But it leads to the awareness of how heroic each of us is, just making it through each day, more or less graciously.:love::hug:
     
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  5. Sasha

    Sasha Fine, thank you

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    I know what you mean - I don't cry about my own situation and somehow it doesn't really hit me but when I see other PWME in these videos, I'm in pieces!

    Mind you, I'm also in pieces at the puppies in the snow in '101 Dalmatians' so maybe I'm just easily emotionally manipulated by films! :cool::dog:
     
  6. ahmo

    ahmo Senior Member

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    ha ha. I found myself on something called HappyTV on youtube, watching vid after vid of dogs and cats.:):cat::balloons:
     
    Sasha likes this.
  7. sarah darwins

    sarah darwins I told you I was ill

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    Fabulous. It looks like the film I've been hoping someone would make. Is it going to be picked up by any TV stations (it looks perfect for Channel 4 in the UK)? That could be a game changer. Great stuff.
     
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  8. Sasha

    Sasha Fine, thank you

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    It would be great if a TV station put it on. I don't know what the distribution plans are but Ryan is very savvy. It wouldn't hurt to post on FB to suggest that to him, though, for those who are FB-capable!
     
    Gingergrrl, SDSue and sarah darwins like this.
  9. SDSue

    SDSue Southeast

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    Now this is what a stock photo of moderate ME/CFS should look like.

    * taken from 0:22 sec in Forgotten Plague Theatrical Trailer:



    Screen Shot 2015-05-14 at 8.37.33 AM.png
     
    Jill, Gingergrrl, justy and 8 others like this.
  10. SDSue

    SDSue Southeast

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    I love the word "hugeness". I spend most days in dissociated denial. I think that's why I spent so much time and energy looking for an alternative diagnosis - anything other than ME. I just can't accept this life sentence without parole. That is to huge.

    Graciously? Some days more than others. :cautious:

     
    Gingergrrl, ahmo, snowathlete and 2 others like this.
  11. Sasha

    Sasha Fine, thank you

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    I watched this superb, very skilfully made fundraising video that was featured on Jen Brea's Canary FB page yesterday (if anyone is on FB I think they should tell MERUK about it because it's not on their page!):

    https://www.facebook.com/canaryfilm/posts/564222170382187



    Very effective, and this excellent brother of a long-term PWME is 71p off £4,000 after just 12 days.

    I think this shows what a well-done video can do. Like it or not, we've all been exposed to decades of TV and we're trained to respond to high production values!

    Can't wait for Forgotten Plague and Canary to come out.
     
    rosie26, catly, ahimsa and 7 others like this.
  12. alex3619

    alex3619 Senior Member

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    What I found interesting is the notion of using civil disobedience. It is also the case, as stated in the trailer, that its about building up good things in society, not tearing things down. Civil disobedience, as a tactic, is about creating a better world. So it cannot be about violence or destruction. It does have to be about opposition. to things that are not working.
     
    mango, SDSue, Hanna and 3 others like this.
  13. sarah darwins

    sarah darwins I told you I was ill

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    Well, it bought tears to my eyes so I guess I'm properly Pavlovian :p

    Well done, Tom Whittingham (who looks a lovely fella). If I had any money, I'd sponsor him!!
     
    justy, catly, ahmo and 1 other person like this.
  14. ahmo

    ahmo Senior Member

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    This vid is so moving, I'm supporting w/ a tiny donation. Again bawling, watching someone getting ready for his run:aghhh:
    Thank you Tom Whittingham. You are the best big brother.:love:
     
    justy and Sasha like this.
  15. Sasha

    Sasha Fine, thank you

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    Yes, I coughed up too! He really is a terrific brother.
     
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  16. sarah darwins

    sarah darwins I told you I was ill

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    I hadn't realised you could do diddy donations. I've done the same.
     
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  17. ahmo

    ahmo Senior Member

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    I haven't actually done it yet, just opened the page. I'm glad small amounts are possible.:thumbsup:
     
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  18. Sasha

    Sasha Fine, thank you

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    I don't think there's any minimum amount on Justgiving.
     
  19. Sasha

    Sasha Fine, thank you

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  20. lnester7

    lnester7 Seven

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    How can I see the video?? and show to family?
     

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