• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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New Rituxan blog

justy

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U.K
Hi dsdmom - sounds like you are having a really rough time - so sorry to hear that.
Hope things settle down soon,
Justy xx
 

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
Just caught up on your blog posts - thanks for sharing all this with us, and being such a pioneer. Your posts got me wondering about how long it was before the responders in the Norwegian trial saw any benefits - i know it was a long time, but can;t recall how long. Also wondering if your doc is following Fluge and Mellas protocol in terms of dosage and number of infusions etc
All the best and take care,
Justy.