1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. Part 1 of a 2-part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS. Part 1 focuses...
Discuss the article on the Forums.

New results on Graded Exercise Therapy from recent AfME survey report

Discussion in 'Latest ME/CFS Research' started by Tom Kindlon, May 18, 2014.

  1. Valentijn

    Valentijn Activity Level: 3

    Messages:
    6,038
    Likes:
    8,392
    Amersfoort, Netherlands
    Exactly. Why aren't they breaking down the results? It's unlikely that they're substantially different from the previous surveys, in which case lumping together results creates a somewhat misleading picture.

    AfME is not an ME patient organization. They don't serve our interests.
    Wildcat and Min like this.
  2. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    250
    Likes:
    759
    http://www.actionforme.org.uk/get-informed/news/our-news/our-survey-results-managing-me
    Valentijn, mango and Esther12 like this.
  3. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    250
    Likes:
    759
    This means the figures for Graded Exercise Therapy (n=525* approx) are:

    Very helpful: 11%
    Helped a little: 24%
    No change: 18%
    Made it a bit worse: 19%
    Made much worse: 28%

    *Sample size for Graded Exercise Therapy estimated using: full sample was 2018 & 26% said they did GET.
    Valentijn and Esther12 like this.
  4. Esther12

    Esther12 Senior Member

    Messages:
    5,175
    Likes:
    5,161
    The full data does leave GET looking worse.
    Wildcat, Valentijn and Tom Kindlon like this.
  5. Min

    Min Senior Member

    Messages:
    1,146
    Likes:
    1,021
    UK


    http://cfstreatment.blogspot.com.es/2014/06/time-to-deliver-report-how-surveys-on.html
    ukxmrv, Sean, Valentijn and 1 other person like this.

See more popular forum discussions.

Share This Page