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Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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New questionnaire study by Dr. Leonard Jason's group--looking for participants

Discussion in 'Active Clinical Studies' started by richvank, Oct 6, 2011.

  1. richvank

    richvank Senior Member

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    Hi, all.

    Dr. Leonard Jason's group at dePaul University has started a new study to better define what the criteria for ME/CFS should be. It consists of a questionnaire that will seek to find out which of the current criteria a person best fits into. There are two master's degree students who will be carrying out this study. At the Ottawa conference, he asked me if I would help to publicize the study.

    I have known Dr. Jason for several years. He is a psychologist and an epidemiologist, and in my opinion he and his group have done some of the best epidemiology in ME/CFS that has been done. I encourage people with ME/CFS to volunteer to participate in this study. It will involve responding to their questionnaire, and my understanding is that it will be possible for those who participate to find out their individual results in terms of how they match the alternative criteria.

    To get the details, you can contact the team by email at DePaulMECFSResearch@gmail.com You can also contact them by phone at the number below. This is an opportunity to help to develop more focused criteria for ME/CFS, which will ultimately help to enable more focused research and better diagnosis, which is in the interest of all of us.

    ME/CFS Research Team
    DePaul University
    990 W. Fullerton Ave., Suite 3100
    Chicago, IL 60614
    773.325.4900
    DePaulMECFSResearch@gmail.com

    Best regards,

    Rich
     
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  2. Dolphin

    Dolphin Senior Member

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    I think people from outside the US can take part in this. I took part in research which sounds like this there during the summer (I had previously written to volunteer and had been put on a list).
     
  3. richvank

    richvank Senior Member

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    Hi, Dolphin.

    I'll check on that and post what I find out.

    Rich
     
  4. richvank

    richvank Senior Member

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    Hi, Dolphin and the group.

    I checked with Abby at dePaul, and yes, people outside the U.S. are welcome to participate in this study.

    Best regards,

    Rich
     
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  5. Sasha

    Sasha Fine, thank you

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    Welcome back, Rich! And thanks for posting this. I've emailed off to volunteer.
     
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  6. justy

    justy Senior Member

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    I have E mailed them as well, i hope i can take part -we dont often get the chance to help with research in the U.K.
    Thanks for this Rich.:D
     
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  7. Enid

    Enid Senior Member

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    Another volunteer here - emailed too rich.
     
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  8. Sparrow

    Sparrow Senior Member

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    I've inquired too. Might be a stretch for me right now because I'm so sick, but I almost think that makes it more important to participate if I can. I've got plenty of symptoms to go around. ;)
     
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  9. maddietod

    maddietod Senior Member

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    Done! Thanks for posting this.
     
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  10. sandralee

    sandralee

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    Yet another volunteer Rich.
     
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  11. Dreambirdie

    Dreambirdie work in progress

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    Add me to the list.
     
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  12. Nielk

    Nielk

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    I have volunteered too.
     
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  13. OverTheHills

    OverTheHills

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    me too
    OTH
     
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  14. Snow Leopard

    Snow Leopard Hibernating

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    He's also a great guy. :thumbsup:
     
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  15. taniaaust1

    taniaaust1

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    I'll email him too and volunteer. It always feels good knowing one is trying to help things along.
     
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  16. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I also emailed to volunteer.

    Sushi
     
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