1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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New petition for Karina

Discussion in 'Petitions' started by maryb, Sep 2, 2013.

  1. maryb

    maryb iherb code TAK122

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    MeSci likes this.
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Cornwall, UK
    Thanks, @maryb. I just got notified via another forum and did a search here to see if it had been posted here. No replies?? I can only assume that other people haven't seen it. I'll see if I can add something about it to my profile to make it appear with my messages.
     
  3. maryb

    maryb iherb code TAK122

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    @MeSci
    thanks
    once they disappear from the first page of unread posts think people do miss them.
     
  4. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA
    It says that this petition is to be delivered to “the people of the world who believe that we are all born equal with Human Rights”. Do you know how this will be accomplished?
     
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Thanks for pointing out this weakness. I usually scrutinise petitions before signing them, but don't usually check things like this with Avaaz petitions, as they are usually well-worded and targeted. I did notice that it didn't include Karina's surname, which seemed rather odd.

    This does look very vague. I think I will remove the link from my signature as it is so poorly worded and targeted.
     
  6. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    I suggest someone start a petition about Karina and how ME people are being treated at www.care2.com (the biggest online community for human injustice and get their support). We need our shocking cases brought to the eyes of the general public more.

    Maybe someone feels up to doing a news article about how those with ME/CFS can end up being locked up and thought of as being psych patients.. ones like Alison Hunter could also be included included in this story and her death (one could put the link in to the story of her death). With the news..this abuse is still going on.. Karina for example. (the kind of story which will make those in high places and the big insurance companies cringe). With care2 you can also submit a news story.

    We need to start reaching out and gaining the support of other advocates to support us.
     
    Last edited: Jan 3, 2014

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