Dx Revision Watch
Suzy Chapman Owner of Dx Revision Watch
- Messages
- 3,061
- Location
- UK
First let me tell you that if don't always agree with you, I am very grateful for the work you're doing, Charles.
But I really must tell you that I find the way you refer to "real life" whenever someone disagrees with you, very offensive when dealing with people that are deprieved of "real life" because of this terrible disease.
Some of us didn't get the chance to know what "real life" is because they were stuck by the illness too young. Does that mean their experience is less valuable?
And a lot of us have professional skills that haven't been erased because of the disease and perfectly know what it's like to work with people with different viewpoints...
Indeed.
@charles shepherd
The "real world" for me is primary carer of a young man who has had no "real life" for 17 years.
Additionally, in "real life" I have a husband who had cancer 5 years ago and a stroke, last year.
And until last year, I was advocating long distance with a number of agencies for an 89 year old mother with advancing Alzheimers.
All three have required me to advocate on their behalf, to deal with decision makers, to liaise with multidisciplinary teams and negotiate in their best interests. Before my son became ill, I sat on committees; prior to that I had a professional career in graphic design.
It is rather insulting, Charles, to imply that I have little understanding of how panels, committees and work groups function.
Last edited: