1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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New, Improved Project ENOUGH!!! thread

Discussion in 'Action Alerts and Advocacy' started by awol, Aug 13, 2010.

  1. Dreambirdie

    Dreambirdie work in progress

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    REQUEST OR DEMAND

    The difference between these two is that when someone makes a REQUEST, that means they are willing to take either YES or NO for an answer. Whereas when one makes a DEMAND, they are not in the least bit willing to take a NO. In fact most, if not all, demands come with a hissy fit and guilt trip thrown in as a bonus package. And that's a real quick indicator of where a particular person is coming from.

    I think it's good to remember that the discomfort felt by some of the other forum's members for "the way this forum is run," is not any different than the discomfort felt by some of us for the way certain people on that forum have behaved in regard to people here. In other words the discomfort is mutual.

    Given that, I think EVERYONE both HERE and THERE has the absolute right to say no, without any more questions asked.
  2. awol

    awol *****

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    Dreambirdie,

    This post represents sabotage of an important activism project and is not the least bit appreciated.
  3. awol

    awol *****

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    If someone has a problem with the other forum or has anything else to say that is NOT Project ENOUGH!!! please take it to another thread. Enough threads on this very good and useful project have already been destroyed. Thank-you.
  4. Dreambirdie

    Dreambirdie work in progress

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    Hardly. The sabotage is in your mind, not in reality.

    I think my post is VERY valid, considering the circumstances, and your response to it just proves my point.
  5. awol

    awol *****

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    No, it is not valid, because your post is about the other forum, and this thread is about my project. Stop the bickering. It is ridiculous.
  6. V99

    V99 *****

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  7. awol

    awol *****

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    Thanks for the sticky status Cort!

    That was big of you.
  8. Cort

    Cort Phoenix Rising Founder

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    I think what this discussion really indicates is the need for all of us in this small community to work together. I think its a good project, a very laudable project - I think it fits in very well the ME/CFS Awareness project...

    Maybe these good projects will provide the impetus for us to find a way to work together :)
  9. awol

    awol *****

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    Help Project ENOUGH!!! with small bits of time. If you can be on an online forum for 20 minutes a day, you can help with this project! It is all about the same energy we are already using to discuss, focused in clear target areas for maximum effect!

    Otherwise, you can help projects such as PANDORA's with donations:

    http://www.forums.aboutmecfs.org/sh...nched-This-WILL-Get-the-Attention-of-MILLIONS!


    Step up and help yourself!
  10. V99

    V99 *****

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    Absolutely, we can get things changed.
  11. awol

    awol *****

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    UPDATE:

    Team 2 has made some important progress in putting together a list of media contacts and getting their main points assembled.
  12. taniaaust1

    taniaaust1 Senior Member

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    That's so gutsy :) . Thanks for sharing that
  13. Impish

    Impish Senior Member

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    As I mentioned in my response to that post... Please don't link CFS to Polio Vaccine being the source of HIV. There is no scientific basis for that and it makes us look like loons.

    I will help with Project Enough as time permits but ONLY if we stick to scientific fact and don't let crap like this (polio vaccine = HIV) into any efforts. Nothing will get us discounted by the media or scientists faster.
  14. awol

    awol *****

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    The project has nothing to do with the article, but the pattern it describes of squelching any questioning or research on particular topics is certainly very relevant to us.
  15. awol

    awol *****

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    Some people are apparently having trouble with registration. If you are a would-be participant in this project but have not received a confirmation email from registration, please send a note to this email address: wildaisyfl@yahoo.com
  16. awol

    awol *****

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    UPDATE:

    A mascot is rumoured to be in the works. Things are getting VERY serious over there!
  17. Mark

    Mark Acting CEO

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    I don't wish to distract this thread off-topic but regarding earlier comments by awol and v99: awol I'm sorry if I seemed to jump on you a bit with my post, I suppose I was interested in exploring issues around relations and co-ordination between the forums, which I guess is a related but separate issue. Sorry if I antagonised you. I didn't mean to imply that you had been unco-operative, I was really using a quote of yours to make a wider point. Rather than continue all this on a separate thread, if you think there's a separate discussion worth having there about inter-forum communication, I'd be interested.

    v99 said: "I don't even know where you are getting your assumptions from", whereas my problem, v99. is that I don't know where you are getting your assumptions about my assumptions. I can't even guess what assumptions you are saying I am making, but it seems very likely to me that you are actually making assumptions about me, so I'd like to say that my intent here, as always, is constructive and co-operative.

    It seemed to me that although you say the two projects have nothing to do with the forums they are hosted on, nevertheless project ENOUGH!!! is being hosted on the 'good science' forum, and that there is this underlying problem that some people from each forum refuse to visit the other, implying some duplications of effort. I thought that one thing we were exploring was the sharing of key relevant information between projects/forums.

    Anyway the main thing I want to say is I am just trying to constructively ask how we can be more efficient about sharing information, so I'm sorry if my intent has been misunderstood.

    To continue to try to be productive, perhaps this will be of interest to Team 3 for UK purposes...the Love Police in action...

    http://www.brasschecktv.com/page/812.html

    I hope that's me back on topic now...
  18. awol

    awol *****

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    The best way to get all the information is to be a member of both forums! Simple as that. From there it is easy enough to chose where your energy is best spent. Some will prefer it here, some will prefer it there. As they are quite different, this is an easy enough personal choice.

    I have to say that it is awfully scientific over there, and one would probably need a few advanced degrees as well as a very rich sense of humour to adequately summarize it. So first hand is really best.

    cheers,
    awol
  19. awol

    awol *****

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    Hello all,

    I have many things to take care of both in my personal life and for this project. I will no longer be serving as the point person here for our efforts. If you have any questions about what we are doing, please ask V99.

    Thanks for taking a look, and I hope to be working with you for everyone's benefit soon!

    awol out.
  20. awol

    awol *****

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    V99 has gone AWOL so I will do another update:

    In the VERY serious mascot competition, Knackered is running uncontested. His Mulvy design resembles a freedom fighter battling robots and dinosaurs. Think you can beat that?

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