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New immune disease?

Discussion in 'Other Health News and Research' started by Tito, Aug 23, 2012.

  1. GracieJ

    GracieJ Senior Member

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    So even though it is now getting media attention here somewhat, it has been ignored previously. I was a little upset when I first read the newspaper article, probably more so because this paper is in my own city. It always takes me a day or two to regroup and come back and post. So emotional. One or two hundred people? What?? And we are hundreds of thousands... it has to be under-reported or something. I have to wonder if it is "outbreaks" like this that will finally give ME/CFS and all the other variants the needed respectability to be mainstream knowledge. We are not exactly a tag-along group with our numbers.

    Ironic. It is articles like this that are bringing my daughter back around to me. Always tight as could be, all her growing-up years, all through her teens, all through her 20s... then suddenly cold-shoulder. But... she is experiencing some symptoms that may be ME/CFS... maybe Mom isn't so nutty talking to her about possible sleeping viruses from over 20 years ago.
     
  2. Waverunner

    Waverunner Senior Member

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    Sorry, but I wouldn't make that statement. There are enough PWCs who actually are thin and who are wasting away.
    Does anyone know if there is a test for IFN-gamma antibodies. Obviously there has to be one but is it available for the public?
     
  3. liquid sky

    liquid sky Senior Member

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    Fauci was interviewed on TV about this disease. He said no one had it in the US. I don't think that is correct . He also said they were only going to look for it in Asian people.
     
  4. Desdinova

    Desdinova Senior Member

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    Let me guess no one will have it until it's so overwhelmingly obvious that it's here. Only looking for it in Asian people? Hum I remember another disease that only (cough cough) affected a specific group of people.... now what was it's name again?
     
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  5. Waverunner

    Waverunner Senior Member

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    It was also identified in people in the US with Asian descent but we will see.
     
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    I have read that ebv/cmv/hhv6 also avoid the immune system by doing something to interferon. Maybe as ill as theyare that herpes viruses also reactivate in them as well????
     
  7. acer2000

    acer2000 Senior Member

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    Is it partial to any particular type of "Asian" population? Maybe its due to a contaminant in something in a particular type of Asian food? Something thats eaten in Asia, but also in the US among Asians?

    I think they should check other populations as well.
     
  8. Omar88

    Omar88 Senior Member

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  9. Ocean

    Ocean Senior Member

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    I'm in the opposite camp, catching everything and not being able to fight anything off, and getting sick longer and worse than others who get the same illness. How do I get into the other camp? ;)
     
  10. SOC

    SOC Moderator and Senior Member

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    Don't ya wish? I was never in the Catch Nothing camp. I've been more susceptible than most to infections for as long as I can remember.

    Best I can suggest is antivirals -- Valcyte for preference, imo. I used to catch everything, but that has been much less true since we knocked down my active HHV-6 infection. I suspect that the HHV-6 infection had my immune system so worn out (or occupied) that it couldn't deal with the other infections I was exposed to. We're still fighting EBV, but it doesn't seem to be causing me as much trouble as the HHV-6. I certainly don't catch everything anymore. :D
     

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