1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Brain Cells Making us Sick? The microglia connection in ME/CFS & Fibromyalgia
Simon McGrath looks at theories that microglia, the brain's immune cells, could trigger and perpetuate the symptoms of ME/CFS and fibromyalgia.
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New here, and already found help

Discussion in 'General ME/CFS Discussion' started by Iamawake88, Sep 12, 2013.

  1. Iamawake88

    Iamawake88

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    Klein, TX
    I am new to this forum (first post) and for that matter, relatively new to the world of this wide-spread muscular pain and debilitating fatigue. In the last four years or so, I've been seen by so many doctors and tested for so many different things. I may even have in my medical record a misdiagnosed clinically determined dx of Myasthenia Gravis. Granted, the fatigue part has only become a major part of the picture in the last 18 months. Before that, my biggest complaint was extreme muscle tightness. And I wonder now, if what I would have always desribed as tightness, others would desribe as pain. And the moments that I am feeling normal just seem to complicate things as I, even now, ask myself is this for real?

    Anyhow, just wanted to expess my joy in finding this thread and the wealth of associated informative content. Even if I discover that my health issues are not exactly related to ME/CFS, I am sure to find some worthwhile information here. Thanks to the information I found on this page,
    http://phoenixrising.me/treating-cf...nding-a-chronic-fatigue-syndrome-mecfs-doctor
    I discovered that I live only about eight miles from a Fibromyalgia & Fatigue Center. I can't remember the last time I actually looked forward to the next day as I will certainly be calling them tomorrow.

    Lastly, I do realize there are those who go years and years feeling like their life is in a downward spiral with no end in sight with an illness like this, and I promise to pray for you.
  2. SickOfSickness

    SickOfSickness Senior Member

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    US
    Welcome to PR!
  3. Iamawake88

    Iamawake88

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    Klein, TX
    Thank you, SOS. As it turned out the Fatigue Center was closed down. :( There are alternatives about 3-4 times the distance away. But with the family schedule and only one vehicle, and the trouble I have driving longer distances, I'm leaning more toward just finding a rheumatologist near me.

    Time to act on it soon I suppose, as today brought about way more pain than tightness in my muscles. 99% of it (be it pain, or be it tightness) is all in the upper half of my body. Is that common? I've always had a pronounced weakness in a select muscle group of the shoulders/neck and chewing while at the same time very strong (and high endurance) muscles of the legs. I was an avid cyclist for over 25 years.

    Thought I'd ask here. Might not have a chance to ask all that's on my mind when I get to see the doctor.
  4. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    hope you find a good and supportive doctor
  5. madietodd

    madietodd Senior Member

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    East Coast, USA
    I have good luck with extreme muscle tightness by supplementing with potassium. RDI for potassium is 4700mg which is hard to get if you don't eat a lot of vegetables. RDA is 2400.......I totally don't understand why they're so different.

    I seem to need massive quantities of potassium when I take B12, but only then.

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