Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
Discuss the article on the Forums.

New campaigning video on (lack of) UK govt funding of biomedical ME research

Discussion in 'Action Alerts and Advocacy' started by Sasha, Oct 16, 2014.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,778
    Likes:
    34,182
    UK
    I think this is by our forum's own @Graham?

    Nice job, Graham!

     
    WillowJ, alex3619, Mark and 9 others like this.
  2. Graham

    Graham Senior Moment

    Messages:
    1,335
    Likes:
    13,104
    Sussex, UK
    Thanks Sasha. With the usual team, of course, all but 2 from PR!

    I think we are close to tipping the balance here, and with a concerted push we could get some decent biomedical support funding from the establishment. But I think we would be most effective if people with ME got in touch with their local MPs directly. I know how tiring that is, but I think, especially now, that they are more likely to be responsive to such approaches than to an easy online petition. That is why I added a link under the video to a factsheet, that can be downloaded and used as appropriate. I tried out an earlier one on my local MP, and he seemed to be quite stunned by the facts (although I have yet to see what the effect will be).

    I think approaching the media too could shock quite a few healthy folk who tend to assume that our illness has been studied. I'm on steroids for PMR, and my sister asked recently what my ME specialist had to say about it!!!!!

    So how can we whip up support amongst the ME community for a real push? I'm spreading the word as best as I can.
     
    WillowJ, alex3619, Esther12 and 10 others like this.
  3. snowathlete

    snowathlete

    Messages:
    3,312
    Likes:
    14,610
    UK
    Well worth sharing on twitter, facebook etc. Email it to your friends.
    A lot of good work has obviously gone in to this, so let's use it as much as we can to get heard.

    And I'll be sending my MP a copy of that factsheet.

    You can identify your MP and send them an electronic letter quickly and easily through this site. https://www.writetothem.com/

    A hardcopy might be better, if you are up to it, and you can easily get your MPs address here:
    http://findyourmp.parliament.uk/
     
    Last edited: Oct 16, 2014
    catly, Graham and Sasha like this.
  4. Sasha

    Sasha Fine, thank you

    Messages:
    12,778
    Likes:
    34,182
    UK
    catly likes this.
  5. Graham

    Graham Senior Moment

    Messages:
    1,335
    Likes:
    13,104
    Sussex, UK
    catly and Sasha like this.
  6. Graham

    Graham Senior Moment

    Messages:
    1,335
    Likes:
    13,104
    Sussex, UK
    Sorry Sacha: simultaneous thinking!
     
    Sasha likes this.
  7. Graham

    Graham Senior Moment

    Messages:
    1,335
    Likes:
    13,104
    Sussex, UK
    If any of you do contact you MP either by email or face-to-face about biomedical funding, would you please let me know. I'll keep a track of it and send updates (if appropriate). Thanks.
     
    Sasha likes this.

See more popular forum discussions.

Share This Page