International ME/CFS and FM Awareness Day is May 12: The World Will Know
Did you know that May 12 belongs to us? Lots of us are aware of this. We share the buzz on it amongst ourselves. We add blue ribbons to profile pictures. We raise our voices, join our hands, mount the few podiums available to us and tug at the sleeve of the rest of the world.
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NEW by Dr. Lerner - ME/CFS Treatment Resource Guide for Practitioners & ME/CFS video

Discussion in 'General ME/CFS News' started by anncavan, Mar 20, 2012.

  1. SOC

    SOC

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    Yes, Dr Lerner prescribes it for me. :D
     
  2. SOC

    SOC

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    This is consistent with my family's experience. My college-age daughter is in full remission (from 5-9.5). I'm still fighting but have improved from 3-5.5, but have setbacks. My uncle (in his 70's) stayed on antivirals for something like 8 years, going from 7-10. So an approximate 3 point gain seems about right to me.

    Perhaps the longer we've had the viruses or the weaker our immune systems the more entrenched the viruses are or the deeper they are in hard-to-get-at areas of the body (brain, bone marrow). If that's true then it might take longer treatment and higher doses to get at the infections. Or maybe we need to add immune modulators (immunovir, ampligen) or something like Rituximab that quickly kills infected cells before they infect others.
     
  3. Wally

    Wally Senior Member

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    I believe Dr. Kogelnik and Dr. Montoya are using antiviral protocols similar to Dr. Lerner's. Dr. Montoya is located at Stanford Medical Center in Palo Alto, California and Dr. Kogelnik is just a few minutes away in Mountain View, California.

    Last year, Montoya's wait list was about 3 years. Getting an appt. with Dr. Kogelnik was much faster because he just opened up his clinic at the end of 2009. He now has over 1000 patients with lots of interest from around tbe globe in his Rituxan study. Wait time for new patients may have changed, so it would be a good idea to call each office to find out the current status of scheduling an appt. as a new patient.
     

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