No, its something many advocates have been against for quite some time
Apols it was irony . I did know the reality of it.
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No, its something many advocates have been against for quite some time
I am an ardent video gamer, but I am forced to avoid video games that involve any adrenaline, or too much physical activity, and even the very low activity games I have to pace.
The other problem is that at the mild end of the severity spectrum ME patients are not less active than sedentary controls. They just operate in short bursts, and have to rest between bursts. I think this showed up in some actometer study many years ago.
I tend to play action RPG stealth games, or building games. Mostly doing nothing, or sneaking around, or scouting before very brief action. I also play slow strategy games, though typically 4x games. So the vast majority of the time is a quiet game session. Extended activity or action, etc, always crashes me.Anything with a 'timer' on makes my HR go up, even jigsaw puzzles.
At my worst I played one game. Over and over. For years. It was Master of Orion. Its a turn based strategy game, so I could play at a very very slow pace, resting whenever I needed to. During those years I was in zombie mode and have very few memories at all.Yes, I love games but in early stages of illness had to give them up entirely.
and have very few memories at all.
This study has been massively improved as a result of the authors working with ME/CFS advocates and patients. The funding was already granted when the ME/CFS community became involved and so ditching the xbox and allostatic was never an option, but the authors have added in a lot of objective measures. It is a pretty good study and we desperately need our response to exertion/exercise to be quantified and to be studied. It is nothing like the UK PACE/GETSET/MAGENTA trials. The choice of exercise is at odds with exercise physiologists who recommend strength and flexibility and NO aerobic.
Except that it doesn't require PEM, so it's not an ME/CFS study. Yet any positive results will undoubtedly be applied to ME/CFS. They don't know what they're studying, and that makes this project completely useless.It is a pretty good study and we desperately need our response to exertion/exercise to be quantified and to be studied.
And that we're too stupid and/or crazy to realize we're deconditioned and do anything about it.The rationale behind the study is not good however and tells us the authors have views on ME/CFS that are based on the discredited idea that deconditioning is the problem.
When a group has been unfairly maligned its hard to consider a bad faith effort as objective, even if some improvements have been made.This study has been massively improved as a result of the authors working with ME/CFS advocates and patients. The funding was already granted when the ME/CFS community became involved and so ditching the xbox and allostatic was never an option, but the authors have added in a lot of objective measures. It is a pretty good study and we desperately need our response to exertion/exercise to be quantified and to be studied. It is nothing like the UK PACE/GETSET/MAGENTA trials. The choice of exercise is at odds with exercise physiologists who recommend strength and flexibility and NO aerobic.