1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The Pathway to Prevention (P2P) for ME/CFS: A Dangerous Process
Gabby Klein gives an overview of the P2P process, shedding light on the pitfalls with advice as to what we can do in protest ...
Discuss the article on the Forums.

new article on ncubator.ca, "Living Outside the Camp"

Discussion in 'Lifestyle Management' started by Jody, Mar 8, 2010.

  1. Jody

    Jody Senior Member

    Messages:
    4,078
    Likes:
    552
    Canada
  2. KC22

    KC22 Senior Member

    Messages:
    158
    Likes:
    3
    Ohio
    I like it!!! And I'm glad you're going back for all who are so far away from the campfire.. Nice Job, Jodi!!
     
  3. susan

    susan Senior Member

    Messages:
    269
    Likes:
    14
    Gold Coast Australia
    new article

    Jody,
    You are so gifted with words....you know how to grab hold of the deepest feelings. I am trying to "come " out also and am going to read this to my therapist. With this coming out I have noticed a huge amount of angst, a kind of anger that is not anger if that makes sense. It is kind of fight to be part of the game. The therapist suggested I am having "feelings" again instead of just being a "non person"

    If anyone stands in my path I seem to be like a mountain lion. I have never before known myself to speak my mind like I am doing, firming saying what I like and what I dont like. I guess I used to want to be "liked". I think my forced isolation where very few of my family and friends really cared, and know I could have died and still no one cared. So why would I need anyones approval? This is a a very freeing experience....dont care if I am liked ...I am just being me....a NEW me.....one who likes their own company now. My garden is is my best friend.
     
  4. Denn

    Denn Guest

    Great New Article

    Great new article, Jody! Very gripping and with a truly stirring metaphor. When I scrolled back up the page, the light from the lantern seemed to jump out and grab me--as your article did.

    Keep that fire stoked and burning!
    Denn
     
  5. Jody

    Jody Senior Member

    Messages:
    4,078
    Likes:
    552
    Canada
    Thanks KC.

    I have a feeling there will be a number of us who will be going back for the others.:Retro smile:
     
  6. Jody

    Jody Senior Member

    Messages:
    4,078
    Likes:
    552
    Canada
    I was nothing but angry for a couple of years. Not doing alot of arguing or being confrontational for the most part, but it was there all the time, it was bedrock under everything. And I didn't have alot of "bend", if I felt pushed, I pushed back.

    The "niceness" that had always been inherent in me took a back seat on those occasions. I was fighting for my life and I had decided I would be HEARD. The feelings of invisibility caused me to rear up on my hind legs and speak up, whether anyone liked it or not.

    Yes. I know exactly what you're talking about. It wasn't pleasant but I think it was necessary for me to go through this rather than stuff it down. Sometimes back then, if I was very angry or very hurt, I would actually feel pressure in my throat and ears, like something physical was stuck in there and had to come OUT. Couple times my head and neck and ears would get scorching hot, and painful, and I felt like my face must be as red as a tomato. It wasn't but it felt like it.

    I was mad at almost everyone I knew, even people who had done some things to help me. Because though they were being thoughtful, what I needed was so much more. I resented everyone I knew who went out for lunch or on a trip or bought new clothes, while I was in poverty and on the verge of taking the Big Slide Down.

    Keep with it, girl. I think it's important. And ... you are pretty good at expressing what it's like yourself. Don't underestimate your ability to make yourself known. You are doing well.:Retro smile:
     
  7. Jody

    Jody Senior Member

    Messages:
    4,078
    Likes:
    552
    Canada
    Thanks Denn.

    I am touched, and glad to hear that the pictures I tried to paint were effective. Glad to hear the lantern played its part as well. I've always loved that graphic.:Retro smile:

    Responses like yours and others that I get here on the forums help to keep the fire stoked.
     
  8. Orla

    Orla Senior Member

    Messages:
    446
    Likes:
    38
    Thanks Jody for such a thoughtful piece,

    Orla
     
  9. Jody

    Jody Senior Member

    Messages:
    4,078
    Likes:
    552
    Canada
    Orla,

    Thanks for your kind comment. :Retro smile:
     

See more popular forum discussions.

Share This Page