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Knitting Equals Pleasure, Despite ME/CFS
Jody Smith loves knitting. Again. She thought her days of knitting and purling were long over but ... she's back ...
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New article "Chronic Fatigue Syndrome Takes a Bite Out of the Holidays "

Discussion in 'Spirituality and ME/CFS' started by Jody, Dec 8, 2009.

  1. Jody

    Jody Senior Member

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  2. George

    George Guest

    Beautiful

    That was a really wonderful article Jody it felt as if it came from my heart. Thank you for all of the wonderful words you write that help clarify and solidify the experience of CFS/ME from our side of the fence.
  3. Jody

    Jody Senior Member

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    Thanks George,

    (I THINK George is the name of your dog, is that right? :))

    Sometimes I will write strictly "informational" articles. But I think the personal experience ones have their place too. Helps people look past the data and see the real people -- all us chronics :D -- that the data is about. And I think sometimes it just brings it home more.

    I know my story is so many others' story as well. All our stories need to be known. Glad to know you feel this spoke for you a bit. :)
  4. blackbird

    blackbird caged.

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    I don't do crying, but I was close reading that.

    This will be my first Christmas where I'll need to ration myself, and without any cure in the offing (and no treatment whatsoever form NHS), it could be the first of many.

    Glad that you're on the up though. Hopefully we'll all have a route to improvements in the near future.
  5. Jody

    Jody Senior Member

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    Blackbird,

    The first time in many ways is the toughest. But hopefully you will find that using different means of conserving energy, maybe conserving funds, can be okay.

    Sometimes, they may even be an improvement. Depends I guess, on how ragged you used to run yourself at this time of year. :D

    I miss alot of the old stuff as I said in the article. But another side of me is quite relieved. And really doesn't want to go through all the flurry again.

    There is something to be said for simplicity and aiming for peace, balance and ... homeostasis. :)

    Just try to remember that, you are not alone in this. Many other chronics are sharing that space with you, in trying to rest and pace through the holidays, missing their old selves and their old lives.

    Perhaps that will help you to feel less of a sense of loss. I hope so, anyway.:)
  6. Finch

    Finch Down With the Sickness

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    Well done!

    Well done, Jody, as usual. I think the personal stories are helpful to many who are experiencing the same thing but feeling quite alone in it. I also think they're helpful to those who are not chronics but who are willing to try to understand. I'm sure you're reaching a few out there, and every little bit helps!

    Good job.
  7. Snez

    Snez Senior Member

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    Thanks Jody, I appreciated the personal touch in your story. The part that struck a chord with me -being in the vicinity of all the action but not directly involved...this is the real heartache.

    Trying to slow down when everyone else is speeding up takes a lot of self-control...my experience at the moment.

    Last Christmas was a total wipe-out for me. So now that I am feeling better I am enjoying the luxury of baking lots of cookies I cannot eat:).

    hugs,
    Snez
  8. Jody

    Jody Senior Member

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    Snez,

    I can so relate to YOUR story. :rolleyes:
  9. Jody

    Jody Senior Member

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    Thanks Finch. :)
  10. starryeyes

    starryeyes Senior Member

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    Thank you Jody. I came close to crying too. That was really heartfelt and I could relate to everything you wrote. I hope you have a very nice Christmas Season and that you feel good. :)

    tee
  11. Jody

    Jody Senior Member

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    Thanks teejay,

    I appreciate it.

    I hope you have a nice Christmas season too. :)
  12. Ontario52

    Ontario52 Guest

    i come close to crying too... no, not with every article you write, but because you have this damned disease and how you cope with it
  13. Jody

    Jody Senior Member

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    Thanks Al. I know you do. :)

    Guys, meet my husband Alan.
  14. CJB

    CJB Senior Member

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    Hi, Alan!! You're just the guy I've been wanting to talk with. Would you please give Jody a special hug and kiss from us?
  15. Ontario52

    Ontario52 Guest

    be happy to
    baby, i will be rite there

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