Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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New $224,000 donation to OMF End ME/CFS Project

Discussion in 'General ME/CFS Discussion' started by Sidereal, Dec 11, 2015.

  1. Sidereal

    Sidereal Senior Member

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    I can't see a thread about this. Just got this email today.
     
  2. snowathlete

    snowathlete

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    UK
    Fantastic news. Such a great project. And the ppl behind it listen to patients, understand the disease, are determined to help patients, and share their data (complete opposite of PACE authors). Could really turn things around for us. When I got sick in 2008 this was the sort of thing I wished we had but we didn't. Now we do. Important to promote their work and support in all ways we can.
     
  3. Bob

    Bob

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    England (south coast)
    Great news!
     
    Battery Muncher and Dolphin like this.
  4. A.B.

    A.B. Senior Member

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    Hopefully this is just the beginning of the cashflow. They will need a lot more.
     
    Never Give Up and Bob like this.
  5. Sidereal

    Sidereal Senior Member

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    $5m per year is a lot. Hopefully the pilot data they get financed by donations will be juicy enough for a NIH grant application.
     

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