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No Longer Naive in the Ways of The Beast
After having lived for years with ME/CFS, Jody Smith learned there's more to this beast of an illness than she realized, and that what might help one person may not help others ...
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neuromuscular testing, could it be helpful?

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by WillowJ, Apr 29, 2014.

  1. WillowJ

    WillowJ Senior Member

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    WA, USA
    Has anyone had neuromuscular testing and did it show anything?

    Yves Jammes is doing evoked potential testing of muscles in ME/CFS patients and finding interesting things, e.g.
    http://www.ncbi.nlm.nih.gov/pubmed/19457057

    and I'm pretty sure I'd found another group finding same thing. All small studies, though.

    I have a chance to go to a neuromuscular specialist and I don't know whether it would be worth it.

    Super tired of having a disease that is "well, not any disease we know about"... despite noteable pathology which the doctor commented on, "probably that particular problem is caused by deconditioning, or stress"
    :bang-head::bang-head::bang-head::ill::alien::confused::aghhh::grumpy::sleep::sleep::rolleyes:
    Valentijn likes this.
  2. Graham

    Graham Senior Moment

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    I didn't have anything that sophisticated done, but I did have electrodes strapped to my legs and electrical pulses sent through my nerves and muscles, and the effect tracked. They did find a small but significant leakage of the signal. But there was no suggested treatment: that's when the neurologist referred me to an ME specialist.
    WillowJ likes this.
  3. WillowJ

    WillowJ Senior Member

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    no suggested treatment doesn't sound worth it.

    thanks @Graham

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