Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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neuromuscular testing, could it be helpful?

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by WillowJ, Apr 29, 2014.

  1. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    Has anyone had neuromuscular testing and did it show anything?

    Yves Jammes is doing evoked potential testing of muscles in ME/CFS patients and finding interesting things, e.g.
    http://www.ncbi.nlm.nih.gov/pubmed/19457057

    and I'm pretty sure I'd found another group finding same thing. All small studies, though.

    I have a chance to go to a neuromuscular specialist and I don't know whether it would be worth it.

    Super tired of having a disease that is "well, not any disease we know about"... despite noteable pathology which the doctor commented on, "probably that particular problem is caused by deconditioning, or stress"
    :bang-head::bang-head::bang-head::ill::alien::confused::aghhh::grumpy::sleep::sleep::rolleyes:
     
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  2. Graham

    Graham Senior Moment

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    I didn't have anything that sophisticated done, but I did have electrodes strapped to my legs and electrical pulses sent through my nerves and muscles, and the effect tracked. They did find a small but significant leakage of the signal. But there was no suggested treatment: that's when the neurologist referred me to an ME specialist.
     
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  3. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    no suggested treatment doesn't sound worth it.

    thanks @Graham
     

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