Yesterday, I noticed this document being promoted on the forum "People With ME". It's a PDF which has been prepared in the name of http://neuroimmunealliance.org/ The document is entitled "M.E. AWARENESS: A GUIDE TO MYALGIC ENCEPHALOMYELITIS" and is being presented as an information leaflet suitable for May 12 to download, print out and to hand to the public. http://www.neuroimmunealliance.org/resources/Neuroimmune Alliance booklet.pdf On one page, immediately beneath http://neuroimmunealliance.org/ are listed the following organizations: Let's Do It for ME http://letsdoitforme.blogspot.com/ Invest in M.E. - www.investinme.org The Tymes Trust - www.tymestrust.org MCWPA - http://mcwpa.org IAME [sic] - http://imeassoc.com/ ------------ On page 5, it includes content around XMRV: "2006: A group of American researchers at the Cleveland Clinic discovers a new human retrovirus in men with a virulent form of prostate cancer. They christen the retrovirus XMRV, which stands for xenotropic murine leukemia virus-related virus. There are only two other known human retroviruses: HIV and HTLV. XMRV is closely related to a mouse retrovirus. The last retrovirus to jump species was HIVfrom monkeys to humans. "October 2009: A breakthrough discovery is made by scientists at the Whittemore Peterson Institute, Dr. Judy Mikovits and Vince Lombardi et al. discover the virus XMRV in 67% of CFS patients and 4% of healthy controls. Further testing reveals 95% of ME/CFS patients are infected. "December 2009: The Japanese Red Cross issues a disconcerting report that XMRV has been detected in nearly 2% of Japans blood supply "June 2010: American agencies Food and Drug Administration (FDA) and the National Institutes of Health (NIH) direct an XMRV study that seemingly finds XMRV in 80% of patients with ME/CFS. "August 2010: The long awaited FDA/NIH Alter/Lo study published in PNAS confirmed 86% of ME/CFS patients were infected and 7% of healthy controls. Alter paper find not XMRV but MRV (Murine Leukemia Retrovirus). Now we know we have a family of Human Gamma Retro Viruses (HGRV's for short). "September 2010: Pathogen hunter Dr Ian Lipkin is designated the role of undertaking an HGRV/XMRV study for the National Institutes of Health..." On Page 11... "In 1991 a retrovirus was discovered in ME/CFS patients but the American authorities buried it. A retrovirus called XMRV was subsequently discovered in 2009 in 86% of M.E. patients and confirmed in August 2010 by another study. Dr. Judy Mikovits has stated that There is evidence of a human gamma retrovirus (HGRV) in the population. "There were previously only 2 known human retroviruses: HTLV which causes T-Cell Lymphoma and T-Cell Leukaemia and HIV which causes AIDS. Now there is XMRV. The importance and severity of this finding cannot be overstated. "Just as in AIDS the HIV retrovirus allows other infective agents to cause rare sarcomas, thrush infections, encephalitis and pneumonia, in M.E. the XMRV retrovirus may allow other infectious agents, usually held in check by a healthy immune system, to cause the symptoms of the disease we now know as Myalgic Encephalomylitis." ---------- My questions are these: 1] Does the "Neuroimmune Alliance" comprise the organizations listed in the document immediately beneath its domain name, that is: Let's Do It for ME http://letsdoitforme.blogspot.com/ Invest in M.E. - www.investinme.org The Tymes Trust - www.tymestrust.org MCWPA - http://mcwpa.org IAME [sic] - http://imeassoc.com/ 2] Is this leaflet published in the name of the five organizations above and have these five organizations read and approved the content of this document? 3] If the "Neuroimmune Alliance" does not comprise the organizations listed beneath its URL in this document, which organizations do comprise the "Neuroimmune Alliance"? --------- I have scrutinised the website of http://www.neuroimmunealliance.org/ but no organizations appear to be listed as members of the "Alliance". I note the following information near the top of a page around XMRV: http://www.neuroimmunealliance.org/xmrv---the-story-so-far.php [...] "XMRV can be transmitted by something as simple as brushing teeth in a shared area or sharing a can of lemonade and this may explain why families sometimes have more than one member with CFS..."