Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Neurally mediated syncope - so what ?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by Dechi, Jun 13, 2017.

  1. Dechi

    Dechi Senior Member

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    i had a 30 minute tilt table test in january, along with various tests for dysautonomia. I had never got the report from the specialist, but today my doctor called the hospital and the doctor's assistant told him that I have neurally mediated syncope.

    I know a little bit about POTS, but had never heard of NMS before. I am trying to find out what part of my symptoms this explains : dizziness I suppose, but what else ? Is there any way to control it ?

    It took me by surprise, because they told me everything was normal at the time, and although I know I almost faint sometimes when I move too quick, I always attributed it to my low blood pressure (which is no longer low because of non-related medication I take, pure coincidence).

    If anyone has input on this, I would really appreciate it ! :)
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    There are two slightly different names for this: Neurally mediated syncope and Neurally mediated hypotension. I used to have the NMH. Did you actually faint on the TTT? With both of them there are a variety of drugs that work for some--depending on the particulars revealed in dysautonomia testing and depending on purely individual responses. Then there are means like electrolytes and extra hydration, compression garments etc. Those do help me.
    Normal??? I was told that too as a teenager, though by a GP, not a doc who had just tested me for dysautonomia and found that I had it!
     
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  3. Dechi

    Dechi Senior Member

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    @Sushi I didn't faint during the 30 minute test, but it felt like I was going to towards the end.

    Yesterday my doctor did the 10 minutes test in his office, and I would have fainted after 5 minutes if I hadn't grabbed the table just 1 inch being me. He made me keep going for another 5 minutes, and strangely for the last 5 minutes I seemed to slowly get better...

    The doc who said everything is normal is a dysautonaumia specialist. I guess he was just quicky looking for signs of Pots and didn't look further. I mean he only looked for about 1 minute. I suppose in his mind NMS is not serious amd deserves the " normal " stamp !
     
    Sushi likes this.

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