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NetDoctor - New article on ME/CFS (UK)

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jan 22, 2017.

  1. charles shepherd

    charles shepherd Senior Member

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    New article on ME/CFS on NetDoctor (UK) >>

    http://www.netdoctor.co.uk/healthy-...al&utm_source=twitter.com&utm_campaign=buffer

    Just in case this isn't clear:

    The MEA did not write this article

    As happens on a very regular basis, we are asked to supply basic information on ME/CFS by a journalist or health writer - which we do

    On some occasions we are then asked to check what the journalist has written after proving background information, case histories etc

    But in most cases we do all we can to help but have little or no control over what is then published

    Dr Charles Shepherd
    Hon Medical Adviser, MEA
     
    Woolie, JaimeS, MeSci and 3 others like this.
  2. AndyPR

    AndyPR Senior Member

    Well, I think it's obvious the bits that remain true to the MEAs input and those which the journalist added.
    :bang-head: Most notably to whom? (or who, I can never figure that out...). All we need, a Crawley fatigue circus act, touted as the best thing to happen for ME recently.

    Then you've got the typical snoozy models in the pictures in the article, and the "helpful" related articles "7 Natural Ways to boost your energy" and "The healthiest resolutions you can make this year".

    Comments can't be left on the article but could be left on their Facebook post https://www.facebook.com/netdoctoruk/posts/1618799668147092
     
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  3. A.B.

    A.B. Senior Member

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    Thanks, I had a good laugh.
     
  4. sarah darwins

    sarah darwins I told you I was ill

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    It is funny, but it's also disgraceful. We've said it before, but if a broadcaster made a claim like that for a drug, when the 'evidence' was such nonsense, there would be hell to pay.
     
  5. AndyPR

    AndyPR Senior Member

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  6. trishrhymes

    trishrhymes Senior Member

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    Done, and added a couple more links (Jen Brea's Ted Talk, and Komaroff webinar)
     
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  7. A.B.

    A.B. Senior Member

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    After being given bad advice from doctors and getting worse, this patient is coming to terms with reality and surprisingly feels better emotionally. Would the outcome have been better if reality-based medicine had been practiced? We don't know but it would probably at least saved this patient from unnecessary disappointment.

    It's not a matter of individual differences. CBT simply doesn't work. The research shows this as well, but the authors distort the results and claim it works. Which leads to stories like the above, where patients are asked to achieve the impossible.
     
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  8. JaimeS

    JaimeS Senior Member

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    I left a comment as well. How do UK journalists not notice that they cite White, Chalder, Wessley over... and over... and over again. Surely these three scientists who work together can't represent the only view of an illness. It's maddening because it's Just. So. Lazy.
     
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  9. JaimeS

    JaimeS Senior Member

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    I hope I didn't come across as too snippy. They did their best to represent the patient's perspective, but they LED with the "online CBT is so exciting!"
     
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  10. trishrhymes

    trishrhymes Senior Member

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    Excellent comment, @JaimeS ...

    Though I'm not sure how much traffic their facebook page gets. It says it has 66,000 followers, but other posts seem to have no comments and very few likes.
     
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  11. sarah darwins

    sarah darwins I told you I was ill

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    and they should know. after all, they carry things like this article in today's Guardian which spells out a lot of the problem:

    full article: https://www.theguardian.com/science/2017/jan/20/science-victim-crisis-narcissism-academia

    Personally, I think a big part of the problem here in the UK is that most 'science correspondents' have little or zero scientific knowledge. They can't read the papers, only the press releases.
     
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  12. Sean

    Sean Senior Member

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    Remind you of anybody?

    :whistle:
     
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