1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
Discuss the article on the Forums.

Neopterin/Biopterin & Organix comp results (*High Biopterin/High Glucarate*)

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by kakrpa, Jan 10, 2014.

  1. kakrpa

    kakrpa

    Messages:
    16
    Likes:
    0
    Have any of you had neopterin/biopterin levels tested?

    Just got my results back:
    Neopterin 0.26 (0.15 - 0.79)
    Biopterin 0.21 (0.04 - 0.35)
    Neopterin/Biopterin ratio 1.24 (0.04 - 8.67)

    My test results didn't contain any interpretation/guidance, and my ARNP knows little about pterins. From what I've come across, my results seem to suggest Dihydropteridine Reductase (DHPR) deficiency. Can any of you relate, or know about pterins? I'm curious if this type of Neop/Biop relationship plays a role into my fatigue and severe OCD/anxiety. Btw, interestingly enough, if you look up treatment protocol for DHPR, it indicates a low Phe diet (so it seems to be a secondary form of PKU?), as well as folinic acid.

    I also received my Organix comprehensive amino acid results that indicated "Very High" Glucarate @ 17.5 (max is 10.7) which my ARNP thought was interesting but didn't explain much about what it meant. Other than that, I now know I'm also a fast oxidizer. :)

    Are there additional resources online that anyone can recommend for additional information about how to handle these results??
     
  2. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    407
    Upstate SC, USA
    This is interesting, but I have never had these test before. I hope someone that has knowledge of this can shed some light on your situation. Just out of curiosity what does the "AR" stand for in ARNP? Hope you get some feedback soon and I believe you will.

    Hope you have better days soon!
     
  3. kakrpa

    kakrpa

    Messages:
    16
    Likes:
    0
    Thank you August59! I believe ARNP stands for American Registered Nurse Practitioner. :)
     
  4. Aerose91

    Aerose91 Senior Member

    Messages:
    640
    Likes:
    288
    I have also had these checked and both came back within normal range. This was especially suprising to my doctor and i since i got M.E. from encephalitis and i still have severe, severe mental and psychological symptoms. He said that if neopterin is in normal range than that discounts the possibility of brain inflammation and therefore the actual name "Encephalomyelitis" wouldnt fit. Weird since brain stem inflammation is thought to be largely responsible for this illness
     
  5. vortex

    vortex

    Messages:
    72
    Likes:
    28
  6. Aerose91

    Aerose91 Senior Member

    Messages:
    640
    Likes:
    288

See more popular forum discussions.

Share This Page