Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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NEJM on CFS

Discussion in 'Latest ME/CFS Research' started by MeSci, Jun 17, 2015.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    http://www.jwatch.org/na37817/2015/...y-diagnosis-and-management?query=pfw-featured

    June 15, 2015
    Read full article here.
     
    Last edited by a moderator: Jun 18, 2015
    zzz, Asa, ahimsa and 10 others like this.
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Another piece the same day:

    http://www.jwatch.org/na37816/2015/...drome-were-making-progress?query=pfw-featured

    Read full article here.
     
    Last edited by a moderator: Jun 18, 2015
    Asa, sarah darwins, Sean and 7 others like this.
  3. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    Why are they still using a case definition published in 1994? :bang-head:
     
    Asa likes this.
  4. sarah darwins

    sarah darwins I told you I was ill

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    The link to the 2nd article doesn't work for me, @MeSci
     
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Must have been a blip - I just tried it and it was OK.
     
  6. sarah darwins

    sarah darwins I told you I was ill

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    Ah, it's the shortened link in the "Read full article here." line that isn't working - for either of them. The full links you've given above the extracts work fine.
     
    MeSci likes this.
  7. Kina

    Kina

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    The links have been fixed.
     
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  8. zzz

    zzz Senior Member

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    The New England Journal of Medicine article is actually extremely significant. The NEJM is considered by many (including its own editors) to be the premier general medical journal, with the highest impact factor among general medical journals (54.42). (The impact factor is the number of all the citations in the two previous years of a journal’s articles divided by the number of the journal’s articles published in those two years.) No other journal comes close to that impact factor.

    For decades, the NEJM ignored ME/CFS completely, treating it as if it did not exist. Only three articles about CFS have been published previously in the NEJM, with the last one being published in July of 1989. To finally appear once again in the pages of the NEJM is a big accomplishment - even if the article is a bit mushy.
     
    Bob, Sasha, MeSci and 6 others like this.
  9. Asa

    Asa Senior Member

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    Just a note that editors seem to have problems with SEID: Occupycfs commenters wrote that Annals' Kommaroff piece used Systemic Exertional Intolerance Syndrome instead of Systemic Exertion Intolerance Disease. It's now been corrected. But the Judge piece above also used Exertional instead of Exertion.

    Obviously not the end of the world, but with so much mis/disinformation about, the better/good info needs to be very professional and precise, IMO.
     
    Bob, Valentijn and sarah darwins like this.
  10. Dolphin

    Dolphin Senior Member

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    Note: These weren't published in the NEJM. Just websites that are part of the NEJM group.
     
    Valentijn, Bob and Esther12 like this.

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