Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Negative for Lyme

Discussion in 'Lyme Disease and Co-Infections' started by tinacarroll27, Oct 20, 2016.

  1. tinacarroll27

    tinacarroll27 Senior Member

    Messages:
    154
    Likes:
    583
    I just got my results back for Lyme and it was negative. I was tested using the Elisa test. Does this now mean I do not have Lyme or could it be a false negative?
     
  2. Thinktank

    Thinktank Senior Member

    Messages:
    1,167
    Likes:
    1,266
    Europe + Asia
    No, the ELISA test for borrelia burgdorferi is highly unreliable and in no way sufficient to rule out lyme disease. Not only that, IgM antibodies tend to test negative in chronic lyme disease and the bacteria has several mechanisms to evade the immune system so no IgM is created. IgG is often positive but incompetent doctors believe that means a past infection only.

    The diagnosis of lyme disease is more of a clinical thing than anything else, best to be done by a LLMD (lyme literate MD).

    Other tests you can do for lyme disease;
    LTT (lymphocyte transformation test)
    PCR
    Western blot
    ELISA (ONLY with IgeneX if you are from the US)
    CD57

    It's important to test for viral and bacterial co-infections as well.
     
    dadouv47 likes this.
  3. Cheesus

    Cheesus Senior Member

    Messages:
    1,131
    Likes:
    4,587
    UK
    Unfortunately all Lyme testing has major problems. There are a number of private companies that provide testing, but there is little or no evidence to suggest the tests they run are at all valid, and a test with unknown reliability is inherently unreliable.

    It's a tough one. I've been through this myself. After much research I decided there was no way to trust any route to a definitive answer so I simply fell back on my ME diagnosis.
     
    Fudge, wdb and Webdog like this.

See more popular forum discussions.

Share This Page