LaurelB
Senior Member
- Messages
- 139
Hi,
I have severe ME and am in a bit of a predicament at the moment, as my current doctor (who makes housecalls) is moving out of state at the end of this week. I am therefore searching for a new doctor (Tucson area) who is both ME aware and willing to make housecalls (going to an in-office appointment is simply not an option for me). As one might expect, this search has proved very difficult.
For the time being, I'm likely going to have to go with any doctor willing to see me at home, whether ME aware or not. I'm looking for a summary of the disease that I can give to a new MD that describes the seriousness of the illness and also fully points out the dangers of GET, particularly for those who are severely ill.
I am aware of the IACFS primer, but am concerned because it recommends exercise, even for the bedbound. I"ve been there and done that, and it made me substantially worse. The primer is also very long, and I would like something a bit shorter and thus more likely to be read.
I've checked various patient agency websites but haven't found one that offers what I'm looking for. Any tips would be very helpful. Thank you!
I have severe ME and am in a bit of a predicament at the moment, as my current doctor (who makes housecalls) is moving out of state at the end of this week. I am therefore searching for a new doctor (Tucson area) who is both ME aware and willing to make housecalls (going to an in-office appointment is simply not an option for me). As one might expect, this search has proved very difficult.
For the time being, I'm likely going to have to go with any doctor willing to see me at home, whether ME aware or not. I'm looking for a summary of the disease that I can give to a new MD that describes the seriousness of the illness and also fully points out the dangers of GET, particularly for those who are severely ill.
I am aware of the IACFS primer, but am concerned because it recommends exercise, even for the bedbound. I"ve been there and done that, and it made me substantially worse. The primer is also very long, and I would like something a bit shorter and thus more likely to be read.
I've checked various patient agency websites but haven't found one that offers what I'm looking for. Any tips would be very helpful. Thank you!