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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Need some opinions?

Discussion in 'General Symptoms' started by trev343, May 24, 2014.

  1. trev343

    trev343

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    Wilmington, North Carolina
    In Janunary of 2013 I had a tooth infection and upper respiratory infection. I was on Penicillin which took care of the tooth. The first antibiotic didn't work for the upper respiratory infection so I was then given Levaquin. Following that I had diarrhea and was given 3 round of flagyl for what they thought was Antibiotic Diarrhea.
    I was also abusing tylenol and motrin for a toothache I had.
    After 4 months I had a colonoscopy and was diagnosed with an atypical form of Chron's or colitis... Eosinophilic Colitis....
    I was not a fan of taking meds and my case wasn't sever so I just smoke marijuana occasionally for pain.

    It wasn't until September/October 13 I started having fatigue..
    Symptoms:
    Muscle Soreness
    Depression/Anxiety
    Fatigue
    Mild Sensitivity to light
    Brain Fog/Heavy Head

    The only thing I can think of is I had my wisdom teeth pulled out during that time.

    After trying MD's from Sept to March 2014 I was diagnosed with low Ferritin and Hypothyroidism..... After treating those I felt a reduction only in muscle soreness, but I wouldn't say my muscles now feel fresh.

    I am working with a DR to restore gut health. After getting my Metametrix GI results:
    I am low in Bifido Bacteria and E-Coli
    Taking Innate Response Gi Health to heal the gut.
    Interfase and Biocidin for pathogens and biofilim.
    Ox Bile and Betaine HCL for Bile Acid insufficiency
    And an advanced Electrolye Mix.
    Also supplementing Magnesium and Zinc.

    A few weird things is that some days I feel really bad, some days not good and some days okay.. and once a month I feel almost normal.... also intense exercise doesn't make me feel malaise.. at least not soon after... unless it makes me feel bad 3 or 4 days later if that's possible?

    I don't have any join/skin pain....

    Do you thing I have CFS or is this gut related?
    Should I get tested for Lyme?
  2. minkeygirl

    minkeygirl Senior Member

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    Left Coast
    No one here can diagnose you. There are links here with tests you can have run to rule out other things and help get a better idea of what is going on.

    Gut issues can be part of CFS so it isn't necessarily one or the other. I can't comment on the Lyme but if you think you've been exposed then that is something to consider also.
  3. barbc56

    barbc56 Senior Member

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    How was your low ferritin treated.? Supplemental iron did not help me possibly from not absorbing it because of IBS. I had an iron infusion which helped my RLS but not energy. My red blood cells etc. were normal but with low ferrtin you are still anemic and have resulting symptoms.

    Are you on thyroid meds? If you are you still need to monitor thyroid levels at least six to twelve month intervals. More if you are borderline and not taking meds.

    Good luck and welcome to the forum!:)

    Barb
  4. trev343

    trev343

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    Wilmington, North Carolina
    barbarb Iron Infusion didn't even help me, so they told me nothing I could do.

    I am using T3 only to clear RT3 right now, I am in week 10, hoping all of this could be due to that.
  5. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    I dont think anyone here will be able to diagnose you from what you said. Here's some facts thou.

    * Low Ferritin seems to be able to be caused by ME/CFS. My CFS specailist has told me he gets tested all his ME/CFS patients for this as he sees it so often among this patient group (this can happen without even the normal iron thing appearing abnormal).. as barb said it still can be classified as anemia.

    * Your senstivity to light, unlike fatigue, muscle aches etc is not a common symptom of lots of illnesses and may well point to a developing case of ME.

    * "some days I feel really bad, some days not good and some days okay"
    this also is also not commonly found in lots of other illnesses, ME is a very unstable illness with ups and downs.

    Those things and the more common to many illness things, would certainly have me wondering if you could be getting ME/CFS so I suggest to take care and it may even best to start acting on if you could be and take the normal ME/CFS precautions with things. I dont think it can be told if you are thou developing this at this point as not enough problems yet. I'd say you are currently like an orange flag for it.

    Your history with respiratory infections and other issues and then ending up with these symptoms.. are quite common MECFS history thing with various body burdens going on.. respiratory infection at the start of things is a red flag.

    I have ME and didnt have constant fatigue at first.. and yes it is possible for the post exertional isssues and fatigue to hit some time later eg 36 hrs later or build up with time and hit later so one may not relate the malaise to the activity at first.

    There are at least two at this website who were diagnosed with ME/CFS after dental things like that.. I cant think what its called now (capulations??) but its where one gets something like wisdom teeth pulled and ends up with an infection in the mouth, actually the infection goes in jaw bone and parts of it die and it can give very ME/CFS like symptoms and these end up being diagnosed with ME/CFS. This issues thou hard to treat can be treated and should be treated if you have it. You may need to see a specialist in that.

    I suggest to contact one of those who had this happen for more info. (sorry I cant currently remember a name, hopefully they will see your post or someone will give you name).
    ..........

    It sounds to me that its still early days for you with you still finding and treating things which could well end up ruling out a ME/CFS diagnoses..but do look into the dental thing and find out more about the other at this site who's issues got caused by that kind of thing.
    Last edited: May 24, 2014
  6. Martial

    Martial Senior Member

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    Ventura, CA
    Unfortunately Colitis is one of the possible risks and downsides to extended antibiotic usage, You could have Lyme so it is worth checking out could have been activated from a less severe form from the infection you have, you would need to set an appt with an LLMD and get tested through IgeneX though. I have had over at least 6 or so people recently email me on various websites telling me they were positive. It may not sound like a whole lot but keep in mind this was over a relatively short period of time, and I also do not speak to hundreds of people by any means. What I mean by this is that it is much more common then you would think, I have it myself and its a PAIN in the ass LOL!

    As far as I know it there are curative measures for Colitis though, one actually involving using someone else's gut flora to put into your gut to repair the balance. Supposedly this is one of the most highly curative treatments for it? I know of several people that were on long term antibiotics and got colitis as a result, They eventually got over it though to my understanding, just had to stop using certain things for a period of time. Keep in mind any kind of serious infection can cause all of those symptoms so it could be a combination of a jaw infection, and your gut infections at work, very helpful to rule everything else out though. I think it would also help to get a full panel viral infection check alongside the lyme and co infection tests to see if there is anything else you can treat sooner, rather then later.
  7. caledonia

    caledonia

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    Cincinnati, OH, USA
    The antibiotics will wipe out the good gut bacteria, thus causing gut problems. Levaquin is one of the fluoroquinoline antibiotics. Certain people are reporting horrible health problems from them. Google "floxie" for more info.

    Tylenol depletes glutatione, the body's major antioxidant and detoxifier. Glutathione depletion can cause many of the symptoms of ME/CFS. Motrin = ibuprofin which can cause stomach issues.

    If you did this under general anesthetic, certain common anesthesias and the nitrous oxide commonly used in dentistry can cause further reduction in glutathione. I actually had my first ME/CFS symptoms for a month after wisdom teeth removal, but didn't get really sick until years later.

    Low ferritin can affect energy, as can hypothyroidism. Hypothyroidism can also cause depression.

    EXCELLENT first therapy whether you have ME/CFS or not. The 4R Program in the Metametrix Interpretation Guide seems to be the best way to fix the gut (I've done a ton of research on this).

    This is the hallmark symptom of ME/CFS. (I'm not saying you have it for sure, but this is making it look more in the realm of ME/CFS than plain old chronic fatigue or fibromyalgia.) Try practicing pacing, so you're not crashing from overdoing. You'll feel more consistent. Many people have reported not slowing down and becoming disabled. They feel that if they were told to pace early on, it could have prevented that.

    If you treat the gut and then you feel all better, you can say it was gut related. So basically, time will tell.

    [/QUOTE]
    Although the symptoms don't necessarily sound like it to me, if you think you've been exposed, yes. Do the Igenex test already mentioned.

    =-==-=-=-=

    In general, what you have sounds like it's in the realm of methylation issues. Methylation treatment might be in order, after you've completed the gut treatment. I have many useful links regarding methylation in my signature, starting with the Methylation Made Easy videos.

    Ask your doc if he/she is knowledgeable about this or is willing to learn (it's a new but growing science, so not many docs know about this, but more are being trained all the time.)
    JBB and taniaaust1 like this.

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