Hi everyone, I'm hoping you can help me.....I have Ehlers Danlos, Mast Cell Activation Syndrome, POTS, OA (severe) at all levels in spine, compound heterozygous MTHFR, and CFS/ME with Immune Dysfunction - my numbers plunged badly in the last year (EBV shows that I might have an active flare going on now?)....and a month-long low grade fever that is plastering me to the bed.
HELP!!! I'm really scared. I can barely shower anymore. Can anyone recommend a doctor who can help with the ME/Immune Dysfunction in SoCal?? I'm a rather difficult case because of the mast cell disease, so infusions might send me to the ER......have to be SO careful. I need a very understanding, wise, experienced doc, and hubby is willing to drive beyond SoCal if need be to find the right one!
Thank you so very much, and hoping that everyone is feeling more energy day by day!!!
HELP!!! I'm really scared. I can barely shower anymore. Can anyone recommend a doctor who can help with the ME/Immune Dysfunction in SoCal?? I'm a rather difficult case because of the mast cell disease, so infusions might send me to the ER......have to be SO careful. I need a very understanding, wise, experienced doc, and hubby is willing to drive beyond SoCal if need be to find the right one!
Thank you so very much, and hoping that everyone is feeling more energy day by day!!!