New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Need doctor in upper midwest - MN, ND, SD, IOWA, WI

Discussion in 'ME/CFS Doctors' started by freshveggies, Jun 18, 2012.

  1. freshveggies

    freshveggies Senior Member

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    Looking for a doctor who understands and knows how to treat ME/CFS and methylation.
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    I don't think there are great chances to find such a doc in these States, but someone may have had a good experience. Some have liked is Dr. Karen Vrchota near Minn. http://www.karenvrchota.com/

    Best,
    Sushi
     
  3. freshveggies

    freshveggies Senior Member

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    Thanks Sushi, I have heard of her.
     
  4. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
  5. freshveggies

    freshveggies Senior Member

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    Thank you. I had not seen that site.
     
  6. alwayshopeful

    alwayshopeful

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    I live in MN and trust me, there isn't much going on in the way of CFS doctors. Which is ridiculous considering the U of M is a huge teaching hospital and the Mayo clinic is based here!! I saw one doctor claiming to have CFS as one of her specialties and her best advice was for me to exercise every day----Wow, really?! I am seeing a good holistic doctor that I am reasonably happy with. At least he is willing to run lots of tests. We have talked about the methylation protocol and I think he would work with me on that if I decided to go that route. Not sure how far you are coming from, but he would maybe to a phone consult with you so you could ask some questions. Dr Michal Dole at Dakota Medical Clinic in St Louis Park
     
  7. freshveggies

    freshveggies Senior Member

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    Thank you for the lead. Traveling to the cities is around 5 hours fo me and that is not too bad of a drive.
     
  8. xrayspex

    xrayspex Senior Member

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    u.s.a.
    good luck, WI is bogus
     
  9. xrayspex

    xrayspex Senior Member

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    I see it the same way as AlwaysHopeful for WI--there is someone who is more alternative like the Dr Dole she mentions, private msg me if you want her name, she is respectful and will run tests and experiment if you have the $ and she is reasonably priced and smart and nice but I dont think is a big expert in the latest on CFS
     
  10. ArgyrosfeniX

    ArgyrosfeniX

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    River Falls, WI - USA
    I live just over the border from the Twin Cities in River Falls, WI. There isn't much in the Twin Cities at all, I've been looking for quite a while. I lucked out that the local clinic has an Internist that has been treating ME/CFSers for over 20 years even though it has been mostly symptom relief treatment. He has been willing to listen to me and we're now on a second round of Valcyte (the first was almost 3 years ago).

    If you can't find someone who knows things, it at least helps to have someone that will help you when you know more about your disease than they do... His name is Dr. Jeffery Larson and I'm sure that the only reason I'm not bed-bound is due to his willingness to help me.
     
  11. ArgyrosfeniX

    ArgyrosfeniX

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    River Falls, WI - USA
    For what it's worth,
    I've actually been told by other ME/CFSers to steer clear of the Mayo Clinic, that they don't know what they're talking about. That they base their treatments off of depression algorithms.
     
  12. richvank

    richvank Senior Member

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    Hi, fresh.

    Dr. Karen Vrchota in Winona, MN, was one of the first physicians to start using the methylation protocol. She has a lot of experience with it. She actually used to work for Mayo before she started her own practice. At a preconference seminar before the 2004 AACFS conference in Madison, she gave a talk, and reported that when she worked for Mayo, they used to send all the "fat chart" patients to her. The "fat chart" patients were those who had been to lots of docs and had lots of tests run, but hadn't been helped. Dr. Vrchota decided to start her own practice after a while.

    Best regards,

    Rich
     

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