Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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neck pain and pem

Discussion in 'General ME/CFS Discussion' started by Johnskip, Mar 21, 2017.

  1. Johnskip

    Johnskip Senior Member

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    my pem is always accompanied by this weird neck pain that immobilized me it's awful and horrific to be honest
     
  2. Shoshana

    Shoshana Northern USA

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    Northern USA
    HI @Johnskip

    I have had some long time periods with severe neck pain,
    and is definitely bad.

    Have you found some positions that hurt it less?

    I have to be sure to give mine support,
    cushions that shape correctly, to hold it.

    A pollow that helps it, not hurt it more.

    I also have to be careful when I move, that I do not move it badly.
    Sometimes, it surprises me, no matter what I do.
     
  3. Johnskip

    Johnskip Senior Member

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    are you able to exercise at all?
     
  4. Sandman00747

    Sandman00747 Senior Member

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    United States, Kansas
    I have had that neck pain a thousand times. Sometimes it has been so severe that I thought I was having a stroke. It has lasted anywhere from 5 minutes to several days. It is a most horrid symptom and drives me to go lay down with a heating pad and often times taking pain medication. It is a pain that all but incapacitates me! I feel for you. Having to function with that particular symptom takes all my willpower! Often times that symptom is accompanied by a crippling tinnitus for me too. Bad news!
     
  5. Shoshana

    Shoshana Northern USA

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    Northern USA
    Sadly, no I cannot, @Johnskip
    I tried for many years, to resume, repeatedly, doing very gentle types, but always got worse, so I need to focus now, on trying to maintain any bit of physical ability (intermittent) to do daily self-care.
    But I am sure that our cases and illnesses, are not identical, so I hope you will find a better course, in your future.

    I do not have as constant , or as severe, or as frequent, of the neck pain,
    as I did have, for some years in the past, though. And some days, I can do extreme gentle, stretches and relaxation movements.

    @Sandman00747
    I am sorry you have the extreme neck pain and tinnitus too! That is very tough!
     
    Sandman00747 likes this.

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