Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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National Archive files on ME and CFS

Discussion in 'General ME/CFS Discussion' started by cfsStevew, Jan 20, 2015.

  1. cfsStevew

    cfsStevew

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    Has there been a thread/discussion on the secret files at Kew?

    I am just going through them having been posted by this blogger...

    https://valerieeliotsmith.wordpress...-the-importance-of-fair-and-accurate-records/

    Makes quite interesting reading. Reading about Peter White and Wessely fighting for CFS and describing the Royal Free Outbreak as a 'mass conversion hysteria' and that it is 'certain' they 'do not have encephalomyelitis'....(not sure what evidence this is based upon...)
     
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  2. Aurator

    Aurator Senior Member

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    I don't know, but threads will be merged if necessary.
    Many thanks for posting this! If Valerie Eliot Smith's is the only version of the Kew files available online she has done us a great service.
    Salient sentences my hitherto cursory reading has thrown up are:
    p.7: "Careful studies...have shown unequivocally that the fatigue these patients experience is SUBJECTIVE." (writer's capitals, not mine)
    p.8: "Clinical management MUST (writer's capitals) include identification of the underlying depression and persuasion of the patient to accept this explanation...Graded exercise does and will help."
    I intend to read it all.
     
  3. cfsStevew

    cfsStevew

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    yes it would be great to have an analysis of this document...Ill try to go through it also...
     

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