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Nancy Klimas Opening ME/CFS Clinic Next Month

Discussion in 'General ME/CFS News' started by Cort, Sep 14, 2009.

  1. Cort

    Cort Phoenix Rising Founder

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    Someone who's seeing Dr. Klimas just sent me a notice that Dr. Klimas is opening a clinic in Miami next month. Dr. Klimas then provided this information. The website should be up next month. It sounds like she hopes it will be much more than just a clinic; she wants a strong research tie-in. She's certainly someone to do it.

     
  2. caledonia

    caledonia

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    Sounds very interesting. It sounds like what the CDC *should* be doing but isn't .
     
  3. oerganix

    oerganix Senior Member

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    Klimas clinic

    Did this happen? If so, has anyone here become a patient there?
     
  4. shrewsbury

    shrewsbury member

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    I just sent an email asking for information on the clinic that can be posted on the forum here. WIll post it when I hear back

    islandfinn:)
     
  5. caledonia

    caledonia

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    Cincinnati, OH, USA
  6. shrewsbury

    shrewsbury member

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    Dr Klimas' CFS Clinic

    Dr Klimas is in the process of opening her CFS Clinic.

    [​IMG]



    Welcome to the new Chronic Fatigue & Immune Disorders Research and Treatment Center (Chronic Fatigue Center).

    STAY TUNED FOR DETAILS ON OPENING DATE AND APPOINTMENT SCHEDULING!

    Welcome
    The goal of this new clinic it to provide the highest quality medical care to those patients suffering from Chronic Fatigue Syndrome (CFS) and related illnesses. With excellent assessment tools, skilled staff and years of clinical experience provided by Dr. Klimas and her treatment protocols, we are eager to increase the number of patients served here in South Florida and around the country.

    Heres how the clinic will work. New patients will visit the clinic for an initial assessment with a Klimas-trained Nurse Practitioner. This comprehensive assessment, lasting up to an hour, will lay the foundation for the creation of a personalized treatment plan. Using results from the assessment, sophisticated testing of blood work and select diagnostic testing, the patient will return approximately one month after the initial visit to discuss implementation of the treatment plan.

    Details will follow shortly on our grand opening date and how to make appointments. In the meantime, for more information, email info@cfsclinic.com.

    Dr. Nancy, Klimas,

    Chief Medical Officer,

    [​IMG]
     
  7. Christopher

    Christopher Senior Member

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    Blegh. Another FFC.
     
  8. gracenote

    gracenote All shall be well . . .

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    disappointed

    I am so very disappointed with the name Chronic Fatigue Center. Can we petition her to change it before her grand opening?
     
  9. _Kim_

    _Kim_ Guest

    nice post islandfinn :)

    You really got the hang of the forum features down!

    I continue to be impressed with the likes of Nancy Klimas. From the About Us page:

    Did you hear that? She is going to train doctors to listen to us!!

    And this:
    And there's more:
    And we get a shout out on the Helpful Links page:
    Now for the bad news:
     
  10. shrewsbury

    shrewsbury member

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    Me too gracenote. I was so excited I didn't notice details like that, or the fee schedule that Christopher found. What I had read was that they will have government reimbursements set up in the future and that they are fundraising to pay the costs of people who can't afford them.

    I'm going to email info@cfsclinic.com right now to express my delight at the clinic being on it's way, but puzzlement about the name choice.

    islandfinn:)

    christopher - what is FCC?
     
  11. shrewsbury

    shrewsbury member

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    Thanks for noticing Kim - it only took me about 1 1/2 months!

    Oh - I'm so glad you were able to dig tonight and find some more of the good stuff. Now all I need is a rich boyfriend to whisk me (and a maid/chef) to Florida to attend the clinic and maybe stay a bit for the sun and warmth, maybe for the winter?

    if:)
     
  12. Christopher

    Christopher Senior Member

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    finn,

    FFC stands for the Fibromyalgia and Fatigue Centers. I'm very biased against them, but they do provide good services (for those who can afford it). Tietelbaum is now associated with them, and I just find that they are too pushy in trying to sell supplements and IV's. They don't take insurance and charge similar rates (actually FFC is a bit cheaper it seems).

    I get very angry when people try to make a profit off us, that's all.
     
  13. shrewsbury

    shrewsbury member

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    Thanks Christopher. Agreed re FCC. I get angry too - having donated most of my life's savings to other people's as I tried everything possible to get better.

    Well - let's see what she does. I like the foundation idea. And maybe she's not making a huge profit - maybe that's what the battery of tests, overhead and salaries cost.

    She seems such a straight arrow, a rare voice of reason in all of this, and a caring professional. I'm willingly to suspend judgement.

    if:)
     
  14. _Kim_

    _Kim_ Guest

    Okay, I've gone with islandfinn's full out fantasy. What if I did fly down to Miami this winter? I could do this. I've got a client with an empty condo there that he can't sell. He'd let me stay there. And just to get a feel for the idea, I put the address of the clinic into Google Earth. I still think it's magic how this works, but there it is, a picture of the building that the clinic will be in, with a sign out front that says, "Space Available"
     

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  15. shrewsbury

    shrewsbury member

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    SHe's in the process of opening it. For more info, see this thread.

    islandfinn:)
     
  16. Kati

    Kati Patient in training

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    Very interesting. I am grateful there is another place for patients to get assessed and treated, and for doctors to be trained. I have full trust in Dr Klimas and my gut feeling is she is not in for the money.
    Unfortunately for PWC that have been out of work for so many months or years or decades, it is hard to imagine how you can pay that kind of fee unless you remortgage your home- if at all possible.

    I wonder if the fee is jacked up for out of country patients???
     
  17. Kati

    Kati Patient in training

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    Wild Daisy you'd be surprised to hear about medical fees being double or triple for out of country care.
     
  18. garcia

    garcia Aristocrat Extraordinaire

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    Initial appointment is with a nurse. I'm not sure how many people with ME/CFS will travel to another country to see a nurse.
     
  19. shiso

    shiso Senior Member

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    I read something somewhere (I know, very helpful - but I'm too tired to find the quote) where Dr. Klimas is in effect apologetic about the high costs but explained that she just doesn't have the startup funding (e.g. privately or from the government) to run a new kind of clinic along the lines she envisions. I think the hope is to stay afloat long enough to keep going, as a start.

    Point being, I think the intent is to create a place that serves CFS patients, where there is a lack of such clinics in the country (and around the world). I think Dr. Klimas has impeccable integrity from everything I've read about her (just watch her in the CFSAC meetings, or read her NYT interview) and honestly don't think a profit motive is the driver of this at all.
     
  20. calzy

    calzy Senior Member

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    She is not in it for $

    I am a patient of Dr. Klimas, if she is charging these fees its not for profit, I can assure you. She has a waiting list of 400! I think she got furstrated and is going this route. Until CFS becomes a mainstream illness, that regular Docs can treat, this is a lifesaver for suffering people. Cheney charges $500 an hour. I know her, her heart is in the right place. Simplify the flow of the practice ie: no insurance, and let her get off the ground. Im sure she will find a way at some point to help us who have exhausted our life savings...thank you Dr. Cheney...lol
     

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