Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Namechange 2009

Discussion in 'General ME/CFS News' started by callow, Aug 25, 2009.

  1. SeaShel

    SeaShel Senior Member

    Until there's an official change, there are more than a few medical "professionals" that I would like to tell it's temporary called "You owe me an apology disease". Or if I'm really having a bad day, "you don't know your butt from breakfast disease".
  2. starryeyes

    starryeyes Senior Member

    Bay Area, California
    lol!! That's hilarious and so true anne.

    There are some great ideas here and one thing I think we all agree on... we don't want it pronounced "zand". Also we must refer to this as a disease, always, because it is.

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