• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Name of drug we must never take?

Sing

Senior Member
Messages
1,782
Location
New England
Please someone tell me the name of the drug that is commonly used in a test, perhaps an intravenous test. This may have been reported by Dr. Cheney. The effects on those with ME-CFS can be excruciating pain for days.

I am soon to see a Cardiologist and may have a lot of tests, as my blood pressure is so low that I have passed out at times. My heart rate is usually low too. This is Neurally Mediated Hypotension. Usually I don't get into POTS but can if I simply must race at a time when my blood pressure is very low. And I am worried that he will order a test with this drug!

If you know what drug this is, or in fact, the names of any other drugs we are at risk from, please reply.

Thanks,

Sing
 

Sam Carter

Guest
Messages
435
Is it Persantine, Sing?


"""""""""""""""""""""""""""""""""""""""""
Persantine Effect in ME Patients: Persantine
is a chemical manufactured by Boehringer
Ingelheim. It is employed to perform chemical
cardiac stress testing when a patient cannot exercise
sufficiently to stress the heart. It is a particularly
safe medication but when employed
with many ME patients it can cause severe
muscle pain over the extremities and entire
musculature. Normally this can be reversed by
injection of an antidote but this does not always
work in ME patients. Severe pain and fatigue
can be intolerable and persist for minutes to
days in some ME patients following persantine
use. Persantine works by dilating both peripheral
and cardiac blood vessels and causing the
heart rate to increase as in a POTS patient.
Obviously one major pain and fatigue factor in
ME patients is caused by abnormal dilatation
of peripheral blood vessels. To my knowledge,
no testing of ME patients with persantine has
ever been published by Boehringer Ingelheim
or others. It is one of the reasons I believe that
pain syndromes in ME patients are due to a
pathological vascular physiology.
"""""""""""""""""""""""""""""""""""""""""

from p5 of:

The Nightingale Definition of Myalgic Encephalomyelitis (ME)

Byron Marshall Hyde MD

http://www.tymestrust.org/pdfs/nightingaledefinition.pdf
 

Sing

Senior Member
Messages
1,782
Location
New England
Yes, Sam! Go to the head of the class!

It vaguely occurred to me after I started the thread that Dr. Hyde had written about this, but I didn't know where to look, at least not quickly.

Here is one of the great values of having many heads on this forum, instead of just my own.

I hope other people will take note too, as excruciating pain is not something any of us should have to go through.

Sing