1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
Discuss the article on the Forums.

Nagalase/GcMaf 101

Discussion in 'GcMAF' started by soulfeast, Oct 15, 2013.

  1. soulfeast

    soulfeast Senior Member

    Messages:
    407
    Likes:
    43
    Virginia, US
    I am behind as usual. This topic was over my head and had not tested. Test just in for nagalase and mine is 1.70. I am shocked. I thought I had nailed my illness down to mold toxins and mast cell disorder-pots-eds since I have consistantly high levels of mycotoxins via Real Time Lab testing and sine mast cell interventions have improved my POTS and reactivity to mold. So I am trying to catch up with you all!

    Can this be a fluke? A mistake? Could a cold have caused a 1.70 reading or would it take a more intense viral infection? We had something going around in my family maybe at that time (maybe not.. can't remember and didn't make a mental note of it)

    Where does one go from here with a 1.70 reading? I have been sick since 2005 (start of my attacks which I thought were mast cell attcks). I progressed to worse after 6 months of lyme and babesia treatment. I had mold in my house at the time (around 2007-2009). CFS set in maybe around 2009. That's when the mitochondrial damage started being evident (respiratory one complex). I have not tested positive for viruses except for high titers for EBV IgG.

    Thank you for any info..
  2. Symptomatic

    Symptomatic Senior Member

    Messages:
    194
    Likes:
    74
    Well, you're right there with me. I tested at 1.80 this time last year. Started the Homeo KMAF, and down to 1.20 earlier this year.

    Was going to get retested this week, but I have a cold. Doc suggested waiting for the retest until I've been feeling well for 10 days - not positive the cold will affect the test, but don't want to take the chance.
  3. GcMAF Australia

    GcMAF Australia Senior Member

    Messages:
    658
    Likes:
    552
    I expect that a cold maybe shows that your nagalase is high 9although possibly also contributing to it)
    Some in the Lyme community find that they only get colds when the Lyme treatment is working
    ?
    dont know if this helps
  4. soulfeast

    soulfeast Senior Member

    Messages:
    407
    Likes:
    43
    Virginia, US
    Symptomatic, where do you get homeo KMAF?
  5. maryb

    maryb iherb code TAK122

    Messages:
    2,803
    Likes:
    1,886
    UK
    my nagalase was 2.5 earlier on this year - it was 2.1 - 9 months earlier so I' m going in the wrong direction too.
  6. Symptomatic

    Symptomatic Senior Member

    Messages:
    194
    Likes:
    74
    www.biopure.eu/usa

    The name of the product has been changed from Homeo-KMAF to Homeo-K.Guard. I usually buy 6 bottles at a time to make the most of the shipping charges.

    http://www.biopure.eu/usa/products/homeo-k/homeo-kmaf-50ml.php

    I finally got rid of my nagging cold and had my blood pulled for Nagalase testing last week, hope to have results by the end of the year or early 2014.
    ukxmrv likes this.
  7. soulfeast

    soulfeast Senior Member

    Messages:
    407
    Likes:
    43
    Virginia, US
    Thank you! Please post your results. Are there instructions for taking this?
  8. Symptomatic

    Symptomatic Senior Member

    Messages:
    194
    Likes:
    74
    The text on the bottle is in German. Best I can figure, it says to take 6 drops, 3X/day, not within 10 minutes of eating. I started out taking 5 drops, once a day. After a month, I increased to 5 drops, 2X/day. After another month, I moved up to 10 drops, 2X/day, where I've stayed. If my bloodwork shows that my nagalase is still going down, I'll stick with this dose.
  9. soulfeast

    soulfeast Senior Member

    Messages:
    407
    Likes:
    43
    Virginia, US
    Thank you, Symptomatic. :)

See more popular forum discussions.

Share This Page