Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

Myers cocktail anyone?

Discussion in 'General ME/CFS Discussion' started by unicorn7, Feb 12, 2018.

  1. unicorn7

    unicorn7 Senior Member

    Messages:
    114
    Likes:
    440
    Has anyone had a myers cocktail?

    Before december I have been slowly getting better, my blood levels of inflammation are slowly normalizing as well:thumbsup:

    I still had a lot of problems with muscle weakness, no strength in my arms, leg and back. So I asked my doctor and he said I could try a Myers cocktail. I had one the day after christmas and I had the best week afterwards:)
    Then I had some problems getting the next cocktail at home, but last week I had one again and I had the best week again:thumbsup: I'm starting to like the myers cocktail:D:D

    Has anyone tried this and what was the effect?
     
    BadBadBear likes this.
  2. ChrisD

    ChrisD Senior Member

    Messages:
    228
    Likes:
    444
    East Sussex
    Before I had full blown ME, and when I had CFS/Fibro, I had a Myers Cocktail done in London - it definitely seemed quite effective. In fact I was so overwhelmed by the lift of pain and fatigue that I went walking around London for a whole afternoon (clearly overdoing it) and hence crashed a bit the following week. But for the next month I was definitely doing better, I wish that I had done one a month despite the cost
     
    unicorn7 likes this.
  3. quent100

    quent100

    Messages:
    3
    Likes:
    7
    A couple of years ago I had my first Myers cocktail - and it was amazing - energy levels were back to close to pre cfs - and lasted two weeks. The effect wore off in the third week - I then went back and had a second Myers cocktail - and no effect. Same with third and fourth - zero uplift. Was devastating - thought I had found my cure. At the same time it gave me some hope in a fairly dark time - that there was something out there that could bring me back to my old self - and have my brain functioning as it once had.
     
    unicorn7 likes this.
  4. unicorn7

    unicorn7 Senior Member

    Messages:
    114
    Likes:
    440
    I totally get it, it's hard to not enjoy it when you feel good:) It helps especially for the muscle pain/burning and the weakness I experience the day after:thumbsup:

    How much did it cost in London?
     
  5. BadBadBear

    BadBadBear Senior Member

    Messages:
    347
    Likes:
    372
    Rocky Mountains
    I tried a few times, and the magnesium was too much. I felt unpleasantly stoned for hours after. I can't afford the blood pressure drop.
     
  6. ChrisD

    ChrisD Senior Member

    Messages:
    228
    Likes:
    444
    East Sussex
    It was very expensive, £300 for a Myers with added glutathione, magnesium and C - my approach to health at the time was that I really wanted to keep my job and could put aside something like £300 a month to stay well. So I kind of saw it as a one-off treatment that would give me a lot of improvement. In hindsight I realise that I should have tried to arrange a series of them at a lower price, which I think is entirely possible as they must be making huge profits.
     
  7. Learner1

    Learner1 Professional Patient

    Messages:
    1,626
    Likes:
    2,887
    Pacific Northwest
    I've had Myers cocktails in the past, and get personalized IV nutrients weekly. They've been very helpful in helping me function. I particularly need B12, and getting it into me has literally resurrected me from being in a heap on the floor.

    The Myers cocktail can be customized to your needs, so if too much magnesium is a problem it can be reduced.

    The important thing is to understand why its being offered and what the potential benefits in your situation would be.
     
  8. BadBadBear

    BadBadBear Senior Member

    Messages:
    347
    Likes:
    372
    Rocky Mountains
    My doc tried some adjustments, and eventually left out magnesium all together, they still didn't work well for me at that time. The way my symptoms shift, who knows, it might work better now.
     
  9. Learner1

    Learner1 Professional Patient

    Messages:
    1,626
    Likes:
    2,887
    Pacific Northwest
    It may. It's good to have testing to know what your needs are.;)
     
    BadBadBear likes this.
  10. unicorn7

    unicorn7 Senior Member

    Messages:
    114
    Likes:
    440
    Yes, those private places are making a lot of profit I think:confused: I buy the ingredients in the pharmacy for about 30-40 euro's. I am lucky enough to have a doctor at home;)

    In my cocktail there's calcium, magnesium, vitamine C and all vitamine B's. Pretty simple really.

    What is in yours? B12 helps me a lot as well. I have injected it for the last 5 years, it worked so well in the beginning that I thought for a while that B12 was my only problem. Until I got worse again.
    Now I still inject a high dose IM. It works well for brain fog, it helps get rid of neurotoxines better.

    I have no gluthation yet in mine, I think I will get that later. When my blood levels of inflammation have gone done further.
     
  11. BadBadBear

    BadBadBear Senior Member

    Messages:
    347
    Likes:
    372
    Rocky Mountains
    Seems I need sodium more than anything lately. I tried saline IVs, as well. If I could get a daily hypertonic saline IV, would be happy. But $125 for a liter of water is just crazy.
     
  12. mattie

    mattie

    Messages:
    66
    Likes:
    195
    I had 10 of them, one overy week.
    Did nothing for ME.
     
  13. Eve18

    Eve18

    Messages:
    40
    Likes:
    9
    I tried it. I had 4 or 5, one every week. Didn't help me at all. I was exhausted after each one because I had to drive to the infusion place and walk through parking lot during hot summer. Waste of my time and money.

    I'm glad that you're feeling better after them.
     

See more popular forum discussions.

Share This Page