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Myelin Sheath Damage?

Discussion in 'Neurological/Neuro-sensory' started by JAH, Jun 13, 2014.

  1. Valentijn

    Valentijn Activity Level: 3

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    Only certain infections, primarily involving bacteria with spirochetes, produce the relevant toxins as they die, so those should be the ones creating herx reactions.

    I'm certainly having some reaction, starting 5 days after beginning IV antibiotics for Lyme. I felt great the first 4 days, probably due to the IV fluids, and with no side-effects, which would seem to suggest that I'm not reacting directly to the antibiotics. It's an odd combination of feeling better in some ways and worse in others - like a healthy person with a nasty flu, instead of an ME patient.
    Helen likes this.
  2. shah78

    shah78 Senior Member

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    st pete , florida
    @JAH .You've just described Methylation issues. I'll go with Freddd here (as always). B12 will fix it, even if you don't have the problem:)
    JAH likes this.
  3. Helen

    Helen Senior Member

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    I had an ENG and an EMG at an university hospital and was told by the doctor that the tests differed between myeline and axonal damage. ENG is supposed to show myeline damage and EMG axonal. FWIW.
    Last edited: Jun 15, 2014
    JAH likes this.
  4. alex3619

    alex3619 Senior Member

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    I don't think the science is clear on this. I could be wrong. Loss of the myelin shealth will produce a different result to axonal damage, I think the docs are right on that. What is not clear is the impact of, for example, immune derived inflammation, or infection derived inflammation, or hypoperfusion. I very much doubt this has been researched, but if anyone has I link to good research in this area I would be interested in reading it.
  5. JAH

    JAH Senior Member

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    San Jose
    I will check out his book - really need to decide whether or not to start treatment for Lyme . I have a lot of doubts as to whether I really have it, tests have be been equivical, and feel I most likely have an immuno- neuro disease that fit more into a cfs/me model.
  6. JAH

    JAH Senior Member

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    I didn't know there were tests for myelin sheath antibodies. I will definitely ask my neurologist about those. I did have a GAD blood test, which he felt would be positive given my hyper active reflexes, but was disappointed when negative.
    Thanks Tammy, JAH
  7. adreno

    adreno 3% neanderthal

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    Tundras of Europa
    http://www.ncbi.nlm.nih.gov/pubmed/23328769

    Examples of NRF2 activators are turmeric and resveratrol.
    JAH likes this.
  8. Tammy

    Tammy Senior Member

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    JAH...........The CFS specialist that I went to was an immunologist and ran lab tests that most Dr.'s including neurologists were not familiar with. I know my neurologist had never heard of such a test...........which seems really weird to me.
    JAH likes this.
  9. JAH

    JAH Senior Member

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    @Tammy, thanks. Will ask immunologist about this...JAH

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