The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
Discuss the article on the Forums.

Mycoplasma/TB Lung Problems have destroyed my brain and body

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by physicsstudent13, Feb 26, 2015.

  1. physicsstudent13

    physicsstudent13 Senior Member

    Messages:
    587
    Likes:
    35
    US
    I came down with crippling terrible asthma and sleep apnea after working on faculty in Indonesia. A chest xray showed a calcified granuloma in my lung's lower right lobe. I can't exhale anymore and am brain damaged by the terrible hypoxia. I am unable to sleep, my doctor at Columbia diagnosed me with complex asthma. Inhaling is ok for some reason. I am trying to get a tracheostomy for the 2nd time.
    Could this be a possible mycoplasma/tuberculosis infection? Which antibiotics rifampicin or isoniazid could possibly help?
     
  2. Kati

    Kati Patient in training

    Messages:
    5,464
    Likes:
    19,579
    Proper testing a careful medical history from qualified physician and accurate diagnosis are all crucial for treating whatever ails you properly.

    Best wishes for the best medical care possible.
     
    merylg, Valentijn, Mij and 2 others like this.
  3. physicsstudent13

    physicsstudent13 Senior Member

    Messages:
    587
    Likes:
    35
    US
    I have heard that serrapeptase and also natto/lumbrokinase is effective for COPD, but the Dr.'s Best brand didn't do anything. Is there a good brand for this? I also have varicose veins and leg pain so maybe this could help?
    I was on dulera, singulair, combivent but am running out and have tried spiriva prednisone, xopenex, allegra, levocetirizine, NAC. The inhalers helped a little with the chest tightness, but none of these meds helped the exhalation problem. I could have vocal chord dysfunction- what could cause VCD? According to wikipedia, heliox a mixture of oxygen/helium is a VCD treatment.
     
    Last edited: Feb 26, 2015
  4. Kati

    Kati Patient in training

    Messages:
    5,464
    Likes:
    19,579
    Hi @physicsstudent13 I am afraid none of us here has this kind of expertise over here, since this is not a common condition remotely associated with ME.

    Your condition seems very serious to me, and obtaining such advice on the internet, and/or on patient forums might not be appropriate, because we do not have the expertise nor do we have all the details about your condition.
     
  5. xrunner

    xrunner Senior Member

    Messages:
    843
    Likes:
    680
    Surrey
    Hi @physicsstudent13
    I agree with Kati's posts. I'd give priority to proper testing to rule out all possible infections (bacterial, fungal etc) that may be linked to the condition you described and a second opinion if possible.

    I'm not surprised. That particular brand of serra, natto and lumbro did nothing for me.
    What I found out with regard to Serrapeptase is that it only worked for me if it was cultured from Serratia marcescens (E-15). As for lumbrokinase the only brand that worked for me was Boluoke.

    However, I seem to recall that Serrapeptase (and may be other enzymes) are contraindicated for certain respiratory conditions but I don't remember the details but perhaps something to watch out for.
    In any case I personally wouldn't try to self-treat myself until I got a clear medical evaluation of my condition.
     
  6. physicsstudent13

    physicsstudent13 Senior Member

    Messages:
    587
    Likes:
    35
    US
  7. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,333
    Likes:
    21,479
    Albuquerque
    I take Rifampin. It is generally a long term antibiotic for TB--unless it is to deal with a recent exposure as a preventative.

    Sushi
     
  8. physicsstudent13

    physicsstudent13 Senior Member

    Messages:
    587
    Likes:
    35
    US
    I'm going to try nitroxoline with rifampicin for TB and INH also but I heard it can cause liver damage so maybe I'll start with 10 days and see if it helps
     
    Last edited: Mar 2, 2015
  9. physicsstudent13

    physicsstudent13 Senior Member

    Messages:
    587
    Likes:
    35
    US
    I'm going to take serrapeptase with the nitroxoline as a biofilm buster but is there anything else? is regular brand lumbrokinase really effective, it's really expensive for me?
    I've read that the course of isoniazid is 9months to a year for some reason, maybe you need to make sure you completely eradicate the infection instead of just selecting for virulent strains of TB infection
     

See more popular forum discussions.

Share This Page