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Mycoplasma Lab Results.

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Ema, Dec 15, 2013.

  1. Ema

    Ema Senior Member

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    I had mycoplasma tested when I started with Dr L last spring. It came back as high - 295 (0-99) but he said that was not high enough to mean anything.

    I've been on azith (which I think kills myco as well) for a while now. Actually, that result was after about a year treatment with azith. So shouldn't the level be even lower if it is actually all gone?

    Does anyone know at what level mycoplasma is considered a problem?

    Thanks!
  2. knackers323

    knackers323 Senior Member

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    What are you on the abx for?
  3. Ema

    Ema Senior Member

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    Lyme.
  4. SOC

    SOC Moderator and Senior Member

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    Was it an antibody test? IgM antibodies don't necessarily drop quickly, so if you had a mycoplasma infection in the past year or two, your antibodies might still be highish. Maybe a PCR test for mycoplasma (if there is such a thing o_O) would clarify whether you have an active infection or just leftover antibodies.
  5. knackers323

    knackers323 Senior Member

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    There is a pcr test for it. I had one and it came back positive but drs told me it was a very common infection that the body can deal with by itself. ?

    Depends who you listen to I guess
  6. SOC

    SOC Moderator and Senior Member

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    Yeah, the body can handle it IF said body has a healthy immune system. Ignorant doctors assume -- without testing -- that we have normal immune systems and don't give us the meds we need. :rolleyes:
  7. alex3619

    alex3619 Senior Member

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    The body can easily handle a flu and fight it off too. Yet how many die from the flu every year?
  8. xrunner

    xrunner Senior Member

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    Dr Garth Nicolson has researched mycoplasma for a long time, perhaps you could email him for an opinion.
    His contact details here http://www.immed.org/reachus.htm#faculty
    You may also find the document below helpful.
    http://www.immed.org/NewsReports/NewsReports03.2010update/PHA_Nicolson_0709_v4_07.pdf
    In the following presentation there were a couple of slides quoting a study on Lyme/mycoplasma patients and persistence of infections. http://www.ilads.org/lyme_programs/ilads-live/videos/videos_horowitz.php
    My own experience (but had no mycoplasma) agrees with what they both say about treatment.
    merylg likes this.
  9. Ema

    Ema Senior Member

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    I actually had a negative IgM and a positive IgG.

    Maybe a PCR test is the way to differentiate between and old infection and a chronic one?

    @xrunner, that paper was actually the one that got me thinking about all this again!

    He mentions the only lab worth using to test is VIP aka Red Labs USA but they seem to now be defunct. I wonder where they are testing now? Maybe I will send a little email and see if I get a reply.
  10. SOC

    SOC Moderator and Senior Member

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    Stupid me, I got my IgG and IgM mixed up. :redface: IgM are the acute, recent infection ones and IgG are the long-term ones. Dr L probably thinks the IgGs are leftover from a previous infection. Really high IgG would be worrisome, but evidently he doesn't consider yours really high, just normally high.o_O

    As I understand it, PCR tests for the pathogen itself, not the antibodies and so should give a clearer picture. The docs don't like to do PCR because they are expensive and insurance companies complain (and don't always pay).
  11. Ema

    Ema Senior Member

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    I think you are right about L's thinking. But my issue is that I was taking Azith for a year prior to him doing that antibody test so it's not exactly a true baseline.

    I just wonder how high it has to be for him to take notice. I mean, it would be one thing if he starts to treat at 500 and totally another if he doesn't consider it an issue until it's in the thousands or something. Oh, to be able to ask a simple question!

    I suppose I will have to bite the bullet and get the PCR. I just don't want to stop the Azith if I still need it. Nor do I want to stay on it if I don't.
  12. SOC

    SOC Moderator and Senior Member

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    I don't think a true baseline matters in this case unless your IgG titre increases more when you go off azith. I think that would suggest that it's the azith keeping the mycoplasma under control (Can azith do that?) rather than your immune system.

    I empathize about Dr L and asking simple questions!
    Ema likes this.
  13. Ema

    Ema Senior Member

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    So I just found in one of Dr L's documents and this is what it says about mycoplasma:

    http://www.treatmentcenterforcfs.com/documents/MECFSTreatmentResourceGuideforPractitioners.pdf
    So it looks like my level of 295 is *just* normal.

    But if the goal is a serum level less than twice the normal (150 or less), what about all the people that fall into the 150-600 range? Are they just left out of treatment entirely?

    I may test this again next time. I've been on azith/doxy another year since then. If it's going to come down any more with that med combo, I think it will have done so!
  14. minkeygirl

    minkeygirl Is Jim Jones alive and well on PR?

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    @Ema. Are you on the ABX for general infection or something specific? Sorry I can't remember if you said it somewhere.
  15. Ema

    Ema Senior Member

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    Lyme and co.
    minkeygirl likes this.
  16. minkeygirl

    minkeygirl Is Jim Jones alive and well on PR?

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    I was wondering what Nicolson's protocol is, what levels he treats at. I know years ago he did doxy a few weeks on then off. I don't remember his exact protocol.
  17. knackers323

    knackers323 Senior Member

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    Dr L isn't dr Lo is it? The person some claim is the one who weaponised mycoplasma.
  18. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    No, it is Dr. Lerner.

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