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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A New Name & Diagnostic Criteria

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Ecoclimber, Jul 13, 2015.

  1. Ecoclimber

    Ecoclimber Senior Member

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    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A New Name & Diagnostic Criteria
    World Neurology, The Official Newsletter of the World Federation of Neurology by Maggie L. McNulty is an assistant professor at Rush University Medical Center, Department of Neurological Sciences.

    In March 2015, a report from the Institute of Medicine (IOM) was published in the Journal of the American Medical Association to redefine the illness known as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

    Over the years, clinicians and researchers have developed different diagnostic criteria for ME and CFS; however, the two terms describe conditions with similar symptoms. In the World Health Organization’s “International Classification of Diseases,” 10th Revision, both ME and CFS are coded the same and classified as disorders of the nervous system (ICD G93.3). The term “benign myalgic encephalomyelitis” was first used in the 1950s in London when describing an outbreak in patients who experienced a variety of symptoms, including “malaise, tender lymph nodes, sore throat, pain and signs of encephalomyelitis.”

    The cause was never found, but it appeared infectious in etiology, and the term “benign myalgic encephalomyelitis” was used to reflect “the absent mortality, the severe muscular pains, the evidence of parenchymal damage to the nervous system and the presumed inflammatory nature of the disorder.” Then in 1970, two psychiatrists reviewed reports of 15 of these outbreaks and concluded that the outbreaks “were psychosocial phenomena” caused by mass hysteria or altered medical perception of the community.

    MORE:

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  2. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Hmmm, a month later and still no comments.

    At least they are spreading the word.
     
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  3. sarah darwins

    sarah darwins I told you I was ill

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    That's really disappointing, isn't it. Any ideas what's going on? It's almost as though the medical community isn't hearing what the IOM report has to say.

    I wonder if it's something to do with this bit: " .... less than one-third of medical school curricula and only 40 percent of medical textbooks include information regarding this syndrome."
     
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  4. sarah darwins

    sarah darwins I told you I was ill

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    Q. That article (which I think is a really nice summary) mentions something that we see a lot: "The syndrome affects women more than men ..."

    Does anyone know how reliable that assertion is? Or the source?
     
  5. Scarecrow

    Scarecrow Revolting Peasant

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    AFAIK, many studies have reported a higher rate in women.

    One source on prevalence rates, that I gave recently on another thread here, provided a M/F breakdown. Look for the columns at the right of the table - 'Prevalence rates adjusted by response rates'

    The prevalence rate for all definitions of ME/CFS in this study was 0.20% of the adult population under 65. Prevalence in men was 0.09% and in women 0.30%.
     
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  6. sarah darwins

    sarah darwins I told you I was ill

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    @Scarecrow - perfect. Thank you. That looks pretty clear. Sadly I can't help thinking the BPS theories would get less traction if it were a 50/50 split, but it is what it is.
     
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  7. Sasha

    Sasha Fine, thank you

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    I'm just watching Peter Rowe's excellent presentation on managing OI, and he says that NMH was regarded as psychosomatic before tilt table testing came in. Affects more women than men, obv.

    Same story with MS, of course.

    It would be interesting to study this psychosomatic-to-real route for diseases and see if it's more common in diseases that are more prevalent in women.
     
  8. Scarecrow

    Scarecrow Revolting Peasant

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    I've no doubt of that.

    Not saying that ME is autoimmune (fence-sitter) but here's an amusing comment about autoimmune diseases and sex, reported in wiki [my bold]:

    Of course they are. ;)

    To be fair, there is no citation so I googled and found the source from WebMD.com
    I notice that AARDA didn't elaborate. They only one I can think of off-hand where it's more severe is Behçet's, which is very rare. I'm sure that there are more examples but it's such a strange comment.
     
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  9. sarah darwins

    sarah darwins I told you I was ill

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    "... autoimmune diseases that develop in men tend to be more severe."

    Well, that's fair enough. Obviously men are more rational than women and not prone to hysteria. If a man gets an autoimmune disease he's going to get a proper one.

    It seems about 68% of consultants (in the UK) are male, although among the more senior ones (the over 50s) it's a lot higher. Things are changing in the younger age bands:

    Screen Shot 2015-07-13 at 13.14.27.png

    Source: https://www.rcplondon.ac.uk/sites/d...sultant_physicians_and_medical_registrars.pdf
     
  10. Sean

    Sean Senior Member

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    Damn right. We all know men only get real diseases. None of this vapours or wandering wombs malarky for us.

    Aren't you ladies lucky some of us chaps kindly helped you out by getting this disease, so that you will taken so much more seriously by doctors.
     
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  11. Valentijn

    Valentijn Senior Member

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    We could probably help you arrange for a good case of Wandering Testes :rolleyes:
     
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  12. Sean

    Sean Senior Member

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    I can't figure out if I should look forward to it, or run away from it. :wide-eyed:
     
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  13. Valentijn

    Valentijn Senior Member

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    Inability to run away is one of the symptoms. You'd might as well try to make the best of it :D
     
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  14. Dolphin

    Dolphin Senior Member

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  15. osisposis

    osisposis Senior Member

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