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My visit with Dr. Rind

Discussion in 'ME/CFS Doctors' started by drob31, Aug 4, 2014.

  1. drob31

    drob31 Senior Member

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    I had my appointment with Dr. Rind today, and I must say it's given me far more questions than answers.


    THE GOOD:

    • I have new avenue's to investigate: mold, bartonella, and lyme.
    • Dr. Rind is probably operating at the extreme end of human knowledge when it comes to fringe medical conditions, or at least the one's allopath's can't handle nor understand.
    • I was given a homeopathic style physical exam.
    • Dr. Rind is friendly and willing to share knowledge to help me understand my potential conditions.
    • Dr. Rind did not say he solved my condition, rather he put me on a path that will get me closer. I'm extremely impatient, but I look at this as a good thing.
    • They have a convenient supplement "shop" right next to the office. While this seems like a negative thing, not a single person tried to push anything on me, and 3 people told me they were cheaper to get online from another source. Only one of the supplements was unique, and it wasn't that expensive.

    THE BAD:

    • While I was given a ton of time, I felt like I was a little rushed, and the office is chaotic. I didn't get a chance to explain all my symptoms. I had so many labs and paperwork he needed to go over, that alone takes a ton of time.
    • Dr's, assistants, and interns are flying around. Dr. Rind got interrupted A LOT. This disturbed his train of thought, so I have no idea what would have happened had he not been interrupted. Since he was running late with me, which I'm not complain about, he spent at least 2 hours with me, he had to run so quickly he forgot to tell me his MTHFR protocol. I'm sure I can get a sufficient one from Freddd, but I wanted to see his, which his assistant did give me before I left.
    • The cost was 650$ out of pocket since he's out of network, also known as my health insurance sucks. Is it worth it?
    • He has way too many patients in a day. I arrived exactly when I was supposed to despite fighting a traffic jam. I then proceeded to wait 1.5 hours. They should limit the patients to 4 a day, and then it wouldn't be so hurried and rushed. I know this would cut down on profit, but I'm sure that place would still be pullin' 8 figures a year.
    • Computer systems were failing left and right while we tried to utilize them to share information. Get rid of those antiquated computers with Apple OS's. Garbage.
    So where does this leave me? I don't know...

    TBC...
  2. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Where did it leave you? What did he suggest? or cant he currently suggest anything till you've had more tests to rule out the things he's suggested? If any of his suggestions do turn out helpful, Id think it was worth it (as it can sooo very hard to find things which help in this illness. I probably tried out 30 different products at much expensive when I was randomly trying things before I found one which helped a bit).

    I personally do see it would be very hard to know how much time to allow for patients. 2hrs is fairly good and 2hrs may well be enough for some who dont have as many symptoms or whatever, while others who are very sick may only be able to handle 2hr appointments if that.

    The longest appointment Ive ever had with a CFS specialist was four and a half to five and a half hours (I forget which now). That turned out to be very bad as my mind shut down half way throu the appointent and I couldnt absorb anything being said, then of cause I badly crashed from this appointment when I got home.
  3. drob31

    drob31 Senior Member

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    He thinks the reason my thyroid may be underactive, since TSH and T4 are normal, and T3 is lower, is because something in my system is putting the brakes on t3 production since it can't handle the higher energy state. He thinks this could be due to mold, lyme, or bartonella. He also suggested a low dose of iodine and selenium. The iodine both helps the thyroid and kills pathogens. He gave me some protocols for mold, lyme, and MTHFR. The one thing that I know believe is that something is preventing my body from fixing itself like it normally would. I also tested elevated for pyroluria. He said that often times lyme can cause pyroluria.

    He did a hollistic style physical exam, and actually said my pupil contaction time was sufficient to rule out any sort of bad adrenal fatigue.

    Any interesting thing I discovered is that high stress events can "wake up" lyme or bartonella. I don't have any of the normal symptoms of Lyme, but he said unexplained fatigue can be one of them.

    Let me know if you want any information about these protocols.

    The only thing that I really noticed was that I do have mold in my house. I do wake up with mucus in my throat, and sometimes irritated eyes. He was adamant about the mold even though I never told him these symptoms nor about how it was in my house.
  4. soxfan

    soxfan Senior Member

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    North Carolina
    I have to agree with the Lyme/Bartonella being woken up by stress. I had both and was treated for both but we moved back in December from NH to NC and to say the least it was horribly stressful. I am now fairly certain that I am dealing with Lyme again....I started declining in May and am having symptoms again although some are different than before. Plus my fatigue has become much worse.

    I am actually going back up to NH to see my Lyme doctor since no one down here will treat me. My thyroid is sometimes funky and the levels fluctuate even though I stay on the same dose of levothyroxine....
  5. drob31

    drob31 Senior Member

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    Have you ever tried NDT instead of just levo? What are your thyroid symptoms?
  6. soxfan

    soxfan Senior Member

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    I don't think I have any symptoms....I didn't even know I was hypo until they did the testing. I have had all kinds of thyroid testing done and my levels have been stable for about a year. I also have nodules so I have to get US every other year.
    I have never been given anything other than synthroid or levothyroxine. I was also taking cytomel years ago...
  7. drob31

    drob31 Senior Member

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    So they have you medication even though you had no symptoms?

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