My primary care doc referred me to a cardiologist for symptoms of dizziness. I had decided months ago not to bring up my ME/CFS diagnosis, unless I absolutely had to. Telling doctors has never done me any good, and often caused frustration. But I did give him detail about what I meant by "dizzy," which is not simply feeling like I'm about to pass out, but also an awful body feeling that gets worse when standing, made worse with exercise, etc. I also mentioned my heart pounding in the morning, and whatever else I could remember. Plus I told him the tests I had been given. He took my blood pressure lying down and then had me stand, holding onto the table (I'm sure others of you have had this test). Then every so often he asked how I felt. Finally I told him I just got horribly worse, and not just dizzy. I have an awful feeling in my body too. So he took my pressure. It had dropped 30 points, which it's not supposed to do. He diagnosed me with Autonomic Insufficiency. I told him I had heard or of Orthostatic Hypertension, but not Autonomic Insufficiency. He said Autonomic Insufficiency is causing my Orthostatic Hypertension. He also has a treatment plan worked out, but it's too much for me to explain right now. Anyway, maybe he can help me deal this part of the ME/CFS equation. And I will wait until after he tries everything he has in mind before asking about low blood volume, ADH, etc.