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My two detailed comments on the Cochrane Exercise Therapy for CFS review (2015)

Discussion in 'General ME/CFS News' started by Tom Kindlon, Sep 9, 2015.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    Last edited: Sep 9, 2015
  2. Tom Kindlon

    Tom Kindlon Senior Member

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    Last edited: Sep 9, 2015
  3. Tom Kindlon

    Tom Kindlon Senior Member

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    Thanks to those who gave me feedback on earlier drafts of these comments.
     
  4. Tom Kindlon

    Tom Kindlon Senior Member

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  5. Tom Kindlon

    Tom Kindlon Senior Member

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    @Bob posted this elsewhere: http://forums.phoenixrising.me/inde...cochrane-report-says.35474/page-6#post-637835

     
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  6. Tom Kindlon

    Tom Kindlon Senior Member

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    They included two earlier comments in the current pdf so think/hope it can be useful to submit comments

     
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  7. ahimsa

    ahimsa Senior Member

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    @Tom Kindlon - thanks for doing this. Impressive!

    My brain's not up to reading/understanding these comments right now but I wanted to say how much I appreciate the time and energy that this must have cost you!
     
  8. medfeb

    medfeb Senior Member

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    Very impressive piece of work. Thank you! Looking forward to their response
     
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  9. Keela Too

    Keela Too Sally Burch

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    This must take so much time and energy to complete. Thank you.

    I haven't digested all of this yet, but the bit about the PACE trial "risk of bias" seems very pertinent.
     
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  10. Hutan

    Hutan Senior Member

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  11. Tom Kindlon

    Tom Kindlon Senior Member

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    After you submit things, you'll often then be reminded of things you could have said.

    This is a published piece that would have fit in with what I was saying:

     
  12. Tom Kindlon

    Tom Kindlon Senior Member

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    Another thing I've referenced before but forgot to reference here was a Whiting et al. (2001) review:

    The review recommended the use of more objective outcome measures e.g.
     
  13. Denise

    Denise Senior Member

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    I know that feeling very well. I often find myself thinking "I should have included X, Y, Z...."

    @Tom Kindlon thank you for all that you do for us! You do a far better job than I could do!
     
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  14. Tom Kindlon

    Tom Kindlon Senior Member

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    Somebody mentioned "fidelity to the protocol" is a useful piece of jargon to use in a case like this.
     
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  15. Tom Kindlon

    Tom Kindlon Senior Member

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  16. Tom Kindlon

    Tom Kindlon Senior Member

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    Comments definitely don't have to be as long as mine. I hope other people will consider submitting comments.
     
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  17. Tom Kindlon

    Tom Kindlon Senior Member

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  18. Battery Muncher

    Battery Muncher Senior Member

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    Amazing work, Tom!
     
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  19. knackers323

    knackers323 Senior Member

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    Anyone know if this Dr J Whiting still sees patients?
     
  20. Tom Kindlon

    Tom Kindlon Senior Member

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    I think you're thinking of a different Dr Whiting, in Queensland Australia (as the Whiting who did this review isn't a clinician as far as I know).
    Dr Whiting in Australia is on Twitter: https://twitter.com/John_CFS. I get the impression he's still seeing patients.
     

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