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My trip to the Charite in Berlin

Discussion in 'General ME/CFS Discussion' started by TiredSam, May 7, 2016.

  1. TiredSam

    TiredSam The wise nematode hibernates

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    I've just got back from my appointment at the Charite in Berlin. I thought of writing a brief report, but instead I am making a self-indulgent wordy blog about it. Dammit I just feel like writing something. Part 1 is up in the blog section. Part 2 coming tomorrow, or whenever, you know how it is ...
     
    justy, Mel9, KristenSF and 13 others like this.
  2. Sushi

    Sushi Senior Member Albuquerque

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    Loved the images. You gave a really good "feel" of the trip.
    I hope "whenever" happens sooner rather than later. After reading Part 1, I want to know the rest of the story. A real page turner!
     
    justy, Mel9 and TiredSam like this.
  3. Kati

    Kati Patient in training

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    Looking forward to read more @TiredSam you write very well.
     
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  4. *GG*

    *GG* Senior Member

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    I remember some talk about Berlin, but not understanding this thread. We have a link or 2?

    GG
     
  5. TiredSam

    TiredSam The wise nematode hibernates

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    This thread is just to notify people of my blog post here:

    http://forums.phoenixrising.me/index.php?entries/trip-to-the-charite-in-berlin-part-1.1952/

    There are links in that blog with more information about the Charite and how I got to go there. The Charite is the name of the University Hospital in Berlin. They have a CFS outpatients' clinic in their Immunology department. They also do research into CFS under the direction of Prof. MD. Carmen Scheibenbogen, and have published 3 papers recently that have been discussed on PR.

    They investigate CFS as a deficiency of the immune system, and are overwhelmed by the demand from CFS patients, I had to wait 9 months for an appointment. I am in the German health system so I got to go, I have heard that they don't take patients from abroad. I wanted to go because in my opinion it's where the real experts are in Germany and I didn't have to pay thousands for a private appointment.
     
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  6. Theodore

    Theodore Senior Member

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    Thank you Sam!
     
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  7. TiredSam

    TiredSam The wise nematode hibernates

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    Part 2 up, it's taking me a while to get to the main part, sorry about that.
     
    ukxmrv, justy, Mel9 and 5 others like this.
  8. BurnA

    BurnA Senior Member

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    At this rate I'm expecting 4 or 5 parts, but i don't mind, they make for great reading!
     
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  9. Aurator

    Aurator Senior Member

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    We know your game: "make 'em laugh, make 'em cry, make 'em wait".
    We can wait, but so impatiently that if you don't hurry up with the rest I'm going to write it for you.
     
    justy, Theodore, Mel9 and 1 other person like this.
  10. TiredSam

    TiredSam The wise nematode hibernates

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    Part 3 up.
     
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  11. BurnA

    BurnA Senior Member

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    Another cliffhanger ! :thumbsup:
     
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  12. Theodore

    Theodore Senior Member

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    You are killing us "à petit feu"
     
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  13. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    It's great that you feel like doing something. Now off to read ...
     
    TiredSam likes this.
  14. justy

    justy Donate Advocate Demonstrate

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    Where is part 4? Good god man, its worse than waiting for the next Dickens instalment!
     
  15. msf

    msf Senior Member

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    Yes, much as I enjoy suspenseful writing, I really want to know how the Charite currently see ME.
     
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  16. AndyPandy

    AndyPandy Making the most of it

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    Mel9, justy, TiredSam and 1 other person like this.
  17. TiredSam

    TiredSam The wise nematode hibernates

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    I'm sorry, I want to find time to sit down and write it soon, but after the weekend it's back to work and having headaches and other stuff going on etc. It's definitely on the way, but we artists can't be rushed ...

    I was thinking perhaps I should put the next installments behind a paywall, would that be ok with everyone?
     
    Hutan, Mel9, u&iraok and 16 others like this.
  18. worldbackwards

    worldbackwards A unique snowflake

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    Capitalist scum. Why don't you just collaborate on it with Sir Simon, eh, eh? :)
     
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  19. TiredSam

    TiredSam The wise nematode hibernates

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    Part 4 is up, which moves the story on a little bit. This is only going to get done in dribs and drabs, but at least it's still free, due to the the militant reaction of a vociferous minority to my paywall suggestion which has forced me to have a panic button installed in my house.

    I've done the cliff-hanger thing again, just because I can :p
     
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  20. worldbackwards

    worldbackwards A unique snowflake

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    Just release the Charite data, Sam. What have you got to hide? How do we know you aren't switching the endings?
     
    Last edited: May 11, 2016
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