1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
Discuss the article on the Forums.

My son & i are giving the lightning process a go on this week

Discussion in 'Alternative Therapies' started by coxy, Mar 20, 2010.

  1. JillBohr

    JillBohr Senior Member

    Messages:
    247
    Likes:
    0
    Columbus, OH
    Hi Joan, I agree. Something is strange. I was thinking of my friend that put links to music videos (which I enjoyed) and I think the music industry if very protective. There was an artist that had his account canceled and it was his own song.
  2. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    54
    Yes, Jill, I was thinking that your friend may have been linking to vid.s which transgressed music copyright - an issue on YouTube - but Greensmith?! Can't understand at all! I think it makes a great deal of sense to at least consider that LP may have played a part. They would have the sheer numbers to mount some kind of objection that FB might listen to if they were clueless which, of course, they would be. It's not unreasonable, I think, to consider this as a possibility.

    And, yay, he's back! And, I'm a member of his group now! And, it's only made his group bigger!!!

    :victory:
  3. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

    Messages:
    1,787
    Likes:
    487
    UK
    http://www.healinghawk.com/prospectushealing.htm

    [...]


    "Phil Parker is already known to many as an inspirational teacher, therapist, healer and author. His personal healing journey began when, whilst working with his patients as an osteopath. He discovered that their bodies would suddenly tell him important bits of information about them and their past, which to his surprise turned out to be factually correct! He further developed this ability to step into other peoples bodies over the years to assist them in their healing with amazing results. After working as a healer for 20 years, Phil Parker has developed a powerful and magical program to help you unlock your natural healing abilities. If you feel drawn to these courses then you are probably ready to join."
  4. fred

    fred The game is afoot

    Messages:
    400
    Likes:
    1
    Someone get me a bucket.
  5. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

    Messages:
    1,787
    Likes:
    487
    UK
    I has a bucket

    [​IMG]
  6. JillBohr

    JillBohr Senior Member

    Messages:
    247
    Likes:
    0
    Columbus, OH
    Oh, Oh, Oh, I DARE you to put this on the Treatment section! No, I double dog dare you!
  7. Adam

    Adam *****

    Messages:
    495
    Likes:
    1
    Sheffield UK
    Old Phil really is a man of the people.

    Reading these eulogies he seems to be somewhere between Dr. Who, Harry Potter and, dare I say it (no offence intended), the next messiah.

    Hope he does not get into politics.
  8. Knackered

    Knackered Guest

    He's not the messiah, he's a very naughty boy!
  9. Adam

    Adam *****

    Messages:
    495
    Likes:
    1
    Sheffield UK
    Always look on the bright side of life

    LMBO.

    Laughed my bottom off. :tear::tear:
  10. flex

    flex *****

    Messages:
    304
    Likes:
    0
    London area
    Too funny :D:D
  11. coxy

    coxy Senior Member

    Messages:
    174
    Likes:
    1
    Update 3 weeks on

    hi, everyone,

    Things are not going in the right direction i'm afraid.
    Strangely i seem to have taken on a new set of ME symptoms that i didn't suffer from before. Gone are the headaches and extreme brain fog, only to be replaced by an inability to sleep until at least 1am, digestive problems including very noisy tummy, sharp pains in tummy when i try to sleep on either side in bed, backache & a wired feeling most of the day until about 6pm when i suffer extreme tiredness. The tingling in my feet has returned when i stand up first thing in the morning, so has the watery eyes first thing in the morning.
    Has this happened to any other LP tryers after a short amount of time?
    I have emailed my trainer to ask if i can communicate with her via email instead of seeing her again on monday, not heard back yet. I've chickened out, and my son doesn't want to go back.
  12. maryb

    maryb iherb code TAK122

    Messages:
    2,740
    Likes:
    1,765
    UK
    We haven't go many here in the UK but this is one we are very proud of:)
  13. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    54
    Hey Coxy,

    I'm sorry to hear that you and your son are not doing so well. It must be so disappointing for you even if it is not terribly surprising. I know you will protect your son but do protect yourself, too. I would imagine it could get pretty confusing. Maybe read some of the posts in this thread before speaking to your trainer just to remember what beliefs this system is based on.

    Don't let anyone tell you that you failed because you were unable to think away a retrovirus, or whatever this is. I know you won't let them tell your wee boy that! He may feel that he failed and spoiled his trip. Poor little lad.

    Don't let them push you around, dear Coxy!

    Thank you for sharing this experience here.
  14. coxy

    coxy Senior Member

    Messages:
    174
    Likes:
    1
    Thankyou Koan,

    Don't worry he doesn't feel he's failed & his holiday wasn't spoilt. Before we went he was aware that he may need to use a wheel chair to help with all the walking, the process hasn't made him worse, just not any better. I haven't mentioned the LP to him at all, certainly haven't been going on at him or any such like. The trainer actually said not to mention it and to refrain from asking him if her was doing the process or not.
    It's difficult now not to get involved in an argument with the trainer if i see her, but they must also be aware that it hasn't worked for us. I'm sure lots of people would just say they were doing well at this point to their trainer, just to avoid confrontation, then the trainer goes away and adds another success story to their figures , which is clearly not the case.
  15. Esther12

    Esther12 Senior Member

    Messages:
    5,175
    Likes:
    5,159
    I think this happens a lot with all sorts of therapies, and then serves to combine with humans tendencies to remember perceived successes more than failures.

    I think that most people treating CFS and achieving nothing will honestly think their work leads to appx 1/3 total recovery, 1/3 significant recovery, 1/3 no change.
  16. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    54
    Hey Coxy,

    You seem as on top of this situation as a person could possibly be. Your observation regarding how much easier it would be to just say things were fine is so illuminating.

    I think Esther's comments make a great deal of sense, too.

    Good luck, Coxy, in your dealings with your trainer. And, thanks again for letting us tag along with you on this.
  17. Adam

    Adam *****

    Messages:
    495
    Likes:
    1
    Sheffield UK
    Fair comment all round.
  18. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,330
    Likes:
    1,762
    London
    Coxy, your new symptoms could be related to Adrenaline and Cortisol - possibly as a result of having pushed your body beyond what it could do.

    Dr Bell wrote that some of his patients with postural hypotension had increased adrenaline if they forced themselves to stand up. The body could not cope with the blood pressure problems and produces extra adrenaline to cope with the stress of standing up.

    That may be resulting in the "tired but wired" symptom. I do have POTs myself but don't get to that stage or symptom.

    Higher cortisol at night may be causing you to be more problems as you report that you are tired from 6pm but cannot sleep until 1am.

    If you have POTs or another blood supply problem and the gut isn't getting enough blood to do it's job that may cause stomach problems as well.

    Just possibilities.

    It sounds as if you are pushing your body to do things that it can't and the new symptoms are it's complaints. In my own case if I were to exercise I would get that same "cannot sleep until 1am" or longer as a symptom part of the post exertional malaise (but for me, not wired). To be followed by extreme weakness, sore throat, glands etc.

    To make matters worse you are probably under a lot of stress and that effects some people badly.

    Hope this helps in some way
  19. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

    Messages:
    1,787
    Likes:
    487
    UK
    He's not a naughty boy, he's got Oppositional Defiant Disorder [DSM-IV 313.81]
  20. fingers

    fingers Senior Member

    Messages:
    210
    Likes:
    7
    SW Endland
    First, Coxy, I would like to congratulate you on starting this productive thread. Not only starting it, but following it through with your own fantastic brand of openness and honesty, If only our mate, naughty boy, Phil had anything anywhere near your personal integrity, Coxy, we might even talk to him as if he were human. He is clearly superhuman and out of our human league (any good Adam? Maybe showing my age....).

    Next, my totally unqualified opinion is that your symptoms are caused by doing too much, encouraged by the hope and euphoria induced by the LP. My experience tells me that if you rest and stay positive (as we naturally do, anyway), your symptoms will abate.

    Next action is to get some science into the LP. Now, Phil is good at science as we've seen. He has a PhD (Doctor of Philparkery) He knows that neuroplasticity can squidge a retrovirus out of RNA....note that I use the term "squidge" very explicitly, meaning that the GAMA NMID IGg RNaseL oojimmywhatsit receptors are completely f****ed by that well placed "STOP".

    Once we get some science into it, we can sue Mr.P off the planet for all his false claims and abuse. Maybe Esther Crawley would be worried by that too. She does after all, have a reputation to protect, and getting into bed with naughty boy Phil is probably not the best route up the greasy pole of medical emminence.
    Whadya say, Phil? Esther? Are you there? Maybe you can get me banned from PR? Or just take me to court. I'm skint anyway.

See more popular forum discussions.

Share This Page